Thinking about stimulator or pain pump for chronic lumbar pain

Posted by mattman1022 @mattman1022, Oct 17 3:36pm

I had a spinal fusion in 2006 and have been dealing with chronic pain ever since... I stopped using opioids later that same year and ever since my pain has largely been uncontrolled. I've tried TENS units, all kinds of other meds, physical therapy, daily exercise, and psychiatric interventions and my life still is very limited by problems caused by chronic pain. Im thinking about a stimulator or a pain pump but curious of others experience. I regret my fusion so im very reluctant to have anymore surgery. I was totally against a pain pump until I found out that medication doesn't cross the blood brain barrier as I developed opioid dependence and misuse following my fusion. I dont mind being dependent on a medication but I dont trust myself to self regulate my use of oral pain medications for more than a few days max and that's only with having my spouse overseeing what im taking. Im specifically interested in how painful the procedures are as again i dont trust myself to be on oral opioid meds for any extended periods of time.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Interesting comments regarding spinal cord stimulators. I had mine removed about a year and a half ago due to it having just stop working. The removal went without a hitch. Now, all this time later, I am feeling odd twitches across the midline of my back. It seems almost as if these twitched showed up around the same time as my neuropathy symptoms appeared. Wondering if anyone else has experienced similar symptoms.

REPLY
Profile picture for anniesezu812 @anniesezu812

I've commented often on this blog about dangers of SCS, cuz my story didnt go well at all.
I read some of you were informed on the authorization sheet...I guess that's what you sign before surgery. Mine was presented 5 mins before being wheeled in. No one warned me of anything.
Im def suffering CSS or something akin to arachonoiditis...
Im deeply upset my Drs didnt see fit to warn me of complications, especially since I told them I didnt feel I was a good candidate. The trial is a breeze, nothing like the real Stimulator. Mine is removed but my quality of life is pretty poor due extensive pain. Spinal cord flare ups are frightening and I would caution anyone to think CAREFULLY before undergoing SCS procedure...when the damage is done, its done...maybe there can be some recovery, time will tell but such resulting pain is NO JOKE.

Jump to this post

@anniesezu812 my twin and I are allergic to nickel, so my sister got hers done she immediately starting getting sick and broke out into a small rash. The doctor would not hear it the rash was most definitely not from the stimulator he said over and over even though she had been tested for every thing under the sun and the rash was getting bigger and worse as far as begging to ooze. Finally she said TAKE IT OUT and guess what as soon as it was removed she begin to heal. I will NEVER understand why, when and who decided that we don’t know our bodies. If they would just get back to being doctors and treat us with respect and compassion but I feel those days are gone and never coming back or at least not in my lifetime

REPLY
Profile picture for stillfighting @stillfighting

@anniesezu812 my twin and I are allergic to nickel, so my sister got hers done she immediately starting getting sick and broke out into a small rash. The doctor would not hear it the rash was most definitely not from the stimulator he said over and over even though she had been tested for every thing under the sun and the rash was getting bigger and worse as far as begging to ooze. Finally she said TAKE IT OUT and guess what as soon as it was removed she begin to heal. I will NEVER understand why, when and who decided that we don’t know our bodies. If they would just get back to being doctors and treat us with respect and compassion but I feel those days are gone and never coming back or at least not in my lifetime

Jump to this post

@stillfighting
Thank you for this. Not only did I suffer right leg/ foot nerve damage / the bled/ scarring tissue, shifting electrodes etc, my body also rejected the hardware.
It was so bad some days I almost wanted to ' unalive ' myself.
I called Dr after Dr begging for someone to listen bht no one acknowledged it was the Stimulator.
The removing surgeon, separate from inplanting Dr grudgingly agreed for my condition i shoukd never have been given the Stimulator and it had made my condition...CRPS worse.
I am eternally grateful for this blog because the more we share the more we come to understand Drs are frequently NOT right and do not credit us for knowing our own bodies.
I have painfully learnt NEVER go against your gut...it virtually never steers you wrong. So happy your sister had a positive outcome. Appreciate the story ❤️

REPLY

Thank you and I’ll pray for you hell that’s all I know to do anymore bc my suffering is downright avoidable, I just constantly being gaslit by the healthcare system and put into submission by my doctor to go with what he think is right. It’s more like what ever will keep him safe from a possible prison sentence.

REPLY
Profile picture for anniesezu812 @anniesezu812

I've commented often on this blog about dangers of SCS, cuz my story didnt go well at all.
I read some of you were informed on the authorization sheet...I guess that's what you sign before surgery. Mine was presented 5 mins before being wheeled in. No one warned me of anything.
Im def suffering CSS or something akin to arachonoiditis...
Im deeply upset my Drs didnt see fit to warn me of complications, especially since I told them I didnt feel I was a good candidate. The trial is a breeze, nothing like the real Stimulator. Mine is removed but my quality of life is pretty poor due extensive pain. Spinal cord flare ups are frightening and I would caution anyone to think CAREFULLY before undergoing SCS procedure...when the damage is done, its done...maybe there can be some recovery, time will tell but such resulting pain is NO JOKE.

Jump to this post

@anniesezu812 I had the same issues with my pump placement and authorization forms

REPLY
Profile picture for heisenberg34 @heisenberg34

Interesting comments regarding spinal cord stimulators. I had mine removed about a year and a half ago due to it having just stop working. The removal went without a hitch. Now, all this time later, I am feeling odd twitches across the midline of my back. It seems almost as if these twitched showed up around the same time as my neuropathy symptoms appeared. Wondering if anyone else has experienced similar symptoms.

Jump to this post

@heisenberg34 I dont believe anything is coincidence anymore. Our bodies ,especially our delicate spinal canals were obviously not designed for these devices. Im very happy for those who get relief but I think the standard for choosing candidates should be far more rigorous. Thnks for the observation.

REPLY

I had a spinal stimulator placed after lumbar and cervical surgeries. (I've had seven ortho surgeries throughout my body. The lumbar area remained so painful.
The stimulator involved two out-patient surgeries. One for temporary placement (outside) to test if it was a viable option. And later, a permanent one was placed. Neither surgeries were very painful and recovery was not difficult. Maybe two days of pain meds.
However it did take 9 months to find my "sweet spot" when adjusting the stimulation. The reduction in chronic pain was well worth the temporary pain of the placement.

REPLY
Please sign in or register to post a reply.