Endometrial cancer at a late age

@alohman08 Thank you for the kind words and will keep you in my prayers. I am learning so much. I was diagnosed in June 2025 with High grade Serous Endometrial Adenocarcinoma. July 9, 2025I had a complete hysterectomy robotically. They staged it as lllC2. Had a CT Scan in August with a CA125 of 3.1. November 1, CT scan was CA125 of2.8 everything normal with no metastases found. So I have decided to wait another three months to get thru the holidays. They told me they felt they got it all with surgery but want to make sure with 6 chemo treats followed by 5 weeks of radiation. Several people have said if there is no cancer or indication way do chemo and radiation as that is aggressive in itself. I feel pressured by chemo and especially by radiation doctors which makes me wonder if they did get it all or if something happened during surgery. I also had a incident with the radiation doctor that also was pressure. I don't want to make waves with that doctor as he may be administering my radiation if I decide to do it. But my consultation was more than that as they insert markers in my cervex without me understanding what they were doing. Any input you can give is helpful, Several terms I don't understand p3mutated and HER2 2+ a lot more but will start with these. I need to fully understand these terms. Thank you for replying.

@alohman08 Thank you for the kind words and will keep you in my prayers. I am learning so much. I was diagnosed in June 2025 with High grade Serous Endometrial Adenocarcinoma. July 9, 2025I had a complete hysterectomy robotically. They staged it as lllC2. Had a CT Scan in August with a CA125 of 3.1. November 1, CT scan was CA125 of2.8 everything normal with no metastases found. So I have decided to wait another three months to get thru the holidays. They told me they felt they got it all with surgery but want to make sure with 6 chemo treats followed by 5 weeks of radiation. Several people have said if there is no cancer or indication way do chemo and radiation as that is aggressive in itself. I feel pressured by chemo and especially by radiation doctors which makes me wonder if they did get it all or if something happened during surgery. I also had a incident with the radiation doctor that also was pressure. I don't want to make waves with that doctor as he may be administering my radiation if I decide to do it. But my consultation was more than that as they insert markers in my cervex without me understanding what they were doing. Any input you can give is helpful, Several terms I don't understand p3mutated and HER2 2+ a lot more but will start with these. I need to fully understand these terms. Thank you for replying.

@greatgrandma2025 Hi.
It sounds like your journey so far is similar to mine. I was diagnosed in January, had surgery (full) as my cancer had spread to fallopian tube, cervix, and one ovary. I recovered from surgery very well, then had 6 cycles of chemotherapy. I would not have waited as my health care team told me that during surgery, there had been a perforation, meaning cancer cells could have slipped out of what was removed (uterus, etc). My chemo was 21 days between each treatment. There were rough days, and I had to have 3 blood transfusions b/c of low blood and I was quite weak at times. However, after that, I also had 27 radiation treatments that I tolerated very well. This was directed to a spot on my abdomen the radiologist felt should be targeted. I also had 2 Bracchy treatments to help prevent cancer from returning in the vaginal cuff. My last radiation was just recent...Nov 5. I'm telling you this b/c I feel almost back to normal today (Nov 17). Chemo "catches" any floater cancer cells, at least how it was explained to me. I am in Western Canada, so all of this almost year long treatment was free. I'm grateful for all of it.

@jeanknoll986 I hope you will feel that it's OK for me to note the following.

Americans often view medical care as "free" in Canada. In effect, while the patient does not pay out-of-pocket or have co-pays in Canada the health care programs are administered by individual provinces. Health care is paid for by incomes taxes into that system through both provincial and federal taxes. And these tax rates are often higher than what many of us pay in our states or federal taxes.

@jeanknoll986 Do you agree with what I shared? Or would you like to add anything to what I wrote?

@greatgrandma2025 Hi.
It sounds like your journey so far is similar to mine. I was diagnosed in January, had surgery (full) as my cancer had spread to fallopian tube, cervix, and one ovary. I recovered from surgery very well, then had 6 cycles of chemotherapy. I would not have waited as my health care team told me that during surgery, there had been a perforation, meaning cancer cells could have slipped out of what was removed (uterus, etc). My chemo was 21 days between each treatment. There were rough days, and I had to have 3 blood transfusions b/c of low blood and I was quite weak at times. However, after that, I also had 27 radiation treatments that I tolerated very well. This was directed to a spot on my abdomen the radiologist felt should be targeted. I also had 2 Bracchy treatments to help prevent cancer from returning in the vaginal cuff. My last radiation was just recent...Nov 5. I'm telling you this b/c I feel almost back to normal today (Nov 17). Chemo "catches" any floater cancer cells, at least how it was explained to me. I am in Western Canada, so all of this almost year long treatment was free. I'm grateful for all of it.

I read and follow all of your stories and questions as I am a 70+ yr old endometrial cancer patient (clear cell, no specific markers; surgery, chemo, radiation, brachy) currently NED. I will be meeting with a new oncologist in a couple of months and I am curious if he will agree with the surveillance plan of my former physician. Following these posts helps me to formulate questions as well as connections. Thank you for sharing your experiences.

@jeanknoll986 Thank you for sharing I am trying to decide what to do . My latest scan came back with lower CA125 of 2.8 and no metastases. What was your stage, and diagnosis and age. These are among my greatest concerns. I also have a vein problems and my legs are swollen. Going to address that today with a venous Dr, as i am concerned that the chemo might not reach those veins. Thank you again. I'm just afraid, did they say they got these floaters? Sorry I am sure you are the closest to my situation.

Hi...also diagnosed with clear cell endometrial cancer Stage 1a age 73. Breast cancer age 63.
Had total hysterectomy and 5 brachytherapy treatments to the vaginal cuff. No chemo deemed necessary. What Stage were you?
Glad you are NED!