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What to do before starting Brinsupri?
MAC & Bronchiectasis | Last Active: Nov 17 7:58am | Replies (5)Comment receiving replies
Yes. I am still in the process. Hopefully it won’t be much longer. I am excited, as is my. Pulomonglist, about this new drug. It is a rbright light of hope with those who struggle with bronchectasis. I sometimes wonder, if anyone else ever suffers bouts of extreme fatigue, like muscle weakness and a bit of lightheadedness and a drop in blood pressure. I know it is soncected to this disease. I am not even in a flare up and I can feel these symptoms. I can’t seem to find an explanation for them
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@renee53
I experience fatigue in general which is common with BE. Also extreme fatigue every day after lunch and I have to sleep for up to an hour. The extreme fatigue does not start to lift for a few hours at which point I am able to function more (not much!). My pulmo says it is the infection needing all my energy and when I eat it takes more energy to digest. Your pseudomonas is down now or otherwise I would think it was from that as it is in my case. You were also on some pretty strong antibiotics for 3 weeks and that can take time to recover. Does the Arikayce cause lower BP?