New to group. Originally diagnosed with Guillion Barre syndrome in january of twenty twenty five. Hospitalized and had plasmapheresis treatments and showed great improvement for ten weeks. Then, plummeted and went through treatments again and continued to get worse. Was able to get into Mayo Clinic in Rochester in June of this year. I was diagnosed with POEMS syndrome and then Plasmacytoma cancer. Steroids, chemo and all the other meds have helped me get stronger but my hands remain at 50% and I have no reflexes from my knees down. I use a wheeled walker in the house, wheelchair for everywhere else. Afo braces do enable me to walk with hiking poles. Not real coordinated, think Frankenstein walking in downhill ski boots. I often wonder, how long the nerves can go without getting signals before they just cannot receive signals again? I am coming up on a year