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Fibromyalgia | Last Active: 1 day ago | Replies (28)

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Profile picture for guineapiglover @guineapiglover

It's horrible living with fibromyalgia but I don't want it to beat me. I am involved in church which is very supportive. I have really bad days and better days but I really don't know how to manage the chronic pain. I was recently diagnosed in September but have been unwell/ not right for 5 years. It was a pain consultant who knew what it was but his advice was try to avoid hospital and taking pills instead do some gentle exercise. I tried swimming the other day and felt terrible afterwards however a day later my pain is less intense and I feel slightly more normal. I know we have to listen to our bodies and learn to take time out, but I am still trying to work and keep going. I have pain everywhere but recently seem to be getting more stiff . Without my Church friends and God I don't think I would be able to cope as well. I am glad I know it's fibromyalgia now but also sad that it's a chronic life long condition that will mean I have to learn to adjust to the new me. I suppose even before a diagnosis people are working their lives around the pain but having a name for the pain and the other symptoms I think can help.

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Replies to "It's horrible living with fibromyalgia but I don't want it to beat me. I am involved..."

@guineapiglover I agree with you, having a name for the pain can help. Prior to the fibromyalgia I was very active and now I'm not - and I just don't feel like myself anymore. I try to do some VERY gentle stretching almost every day and that seems to help. I also do acupuncture, which I firmly believe has helped. I take Lyrica (50mg in the a.m. and 100 mg in the p.m.) which probably helps but has side effects. On the really bad days, I take 2 Aleve in the morning and then alternate with Tylenol throughout the day, and spend most of the time on a heating pad in bed. Life has really changed.