Thinking about stimulator or pain pump for chronic lumbar pain

Posted by mattman1022 @mattman1022, Oct 17 3:36pm

I had a spinal fusion in 2006 and have been dealing with chronic pain ever since... I stopped using opioids later that same year and ever since my pain has largely been uncontrolled. I've tried TENS units, all kinds of other meds, physical therapy, daily exercise, and psychiatric interventions and my life still is very limited by problems caused by chronic pain. Im thinking about a stimulator or a pain pump but curious of others experience. I regret my fusion so im very reluctant to have anymore surgery. I was totally against a pain pump until I found out that medication doesn't cross the blood brain barrier as I developed opioid dependence and misuse following my fusion. I dont mind being dependent on a medication but I dont trust myself to self regulate my use of oral pain medications for more than a few days max and that's only with having my spouse overseeing what im taking. Im specifically interested in how painful the procedures are as again i dont trust myself to be on oral opioid meds for any extended periods of time.

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I’m not saying this will happen to you as we all definitely get different results and I’ve heard of it being the best thing for some however make sure your doctor has looked thoroughly at your medical history to make sure it’s not going to cause you more pain and suffering. I’m currently waiting until I heal fully from a c2-c7 surgery to have a revision bc it’s floating.

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I’m hoping I will be eligible. My entire spine is a horrible mess, bulging discs, degeneration of the spine, narrowing of the spine. Lots of pain going on. I think I would love a contraption that would keep my pain away.

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Profile picture for lizzietish56 @lizzietish56

I’m hoping I will be eligible. My entire spine is a horrible mess, bulging discs, degeneration of the spine, narrowing of the spine. Lots of pain going on. I think I would love a contraption that would keep my pain away.

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@lizzietish56 I do to I’d give anything not to be fifty years old on disability because I can’t work do to my pain and conditions. I wish to wash my own dishes and to cook my own food. I thank god every day for sending me a wonderful husband that took the sickness and in health part seriously..

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Profile picture for stillfighting @stillfighting

@lizzietish56 I do to I’d give anything not to be fifty years old on disability because I can’t work do to my pain and conditions. I wish to wash my own dishes and to cook my own food. I thank god every day for sending me a wonderful husband that took the sickness and in health part seriously..

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@stillfighting I too have a wonderful husband that takes care of me. I’m limited in so many things. He is wonderful. If I didn’t have him I would need someone because I can’t do what I used to be able to do. I’m truly blessed and it sounds like you have that blessing as well.

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Profile picture for lizzietish56 @lizzietish56

@stillfighting I too have a wonderful husband that takes care of me. I’m limited in so many things. He is wonderful. If I didn’t have him I would need someone because I can’t do what I used to be able to do. I’m truly blessed and it sounds like you have that blessing as well.

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@lizzietish56 I do I can’t help but feel so ashamed of myself bc I can’t do what I once did and he reminds me that I’m not broken just bent up a bit lol it’s a hard road to travel and even harder now with the way our healthcare system fails us so much

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Profile picture for laura1970 @laura1970

@carolynhughes75 it really sucks that most people who get a pump, or any spinal surgery are not alerted to this possible complication. I have read that up to 30% of failed back surgeries are due to arachnoiditis

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@laura1970 can you direct me to where I can find this research regarding the 30%
Thanks

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Profile picture for marialyce @marialyce

@laura1970 can you direct me to where I can find this research regarding the 30%
Thanks

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@marialyce I couldn’t find the article I read that postulated 30% of failed back surgeries were caused by arachnoiditis, but I found this study that found > 50% was caused by fibrosis and 13% caused by arachnoiditis
https://www.medigraphic.com/cgi-bin/new/resumenI.cgi

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Profile picture for laura1970 @laura1970

@carolynhughes75 it really sucks that most people who get a pump, or any spinal surgery are not alerted to this possible complication. I have read that up to 30% of failed back surgeries are due to arachnoiditis

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I've commented often on this blog about dangers of SCS, cuz my story didnt go well at all.
I read some of you were informed on the authorization sheet...I guess that's what you sign before surgery. Mine was presented 5 mins before being wheeled in. No one warned me of anything.
Im def suffering CSS or something akin to arachonoiditis...
Im deeply upset my Drs didnt see fit to warn me of complications, especially since I told them I didnt feel I was a good candidate. The trial is a breeze, nothing like the real Stimulator. Mine is removed but my quality of life is pretty poor due extensive pain. Spinal cord flare ups are frightening and I would caution anyone to think CAREFULLY before undergoing SCS procedure...when the damage is done, its done...maybe there can be some recovery, time will tell but such resulting pain is NO JOKE.

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Profile picture for lizzietish56 @lizzietish56

I’m hoping I will be eligible. My entire spine is a horrible mess, bulging discs, degeneration of the spine, narrowing of the spine. Lots of pain going on. I think I would love a contraption that would keep my pain away.

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@lizzietish56 Pls research it carefully, i felt like you and had same diagnosis as you....and ended up far worse. No one warns you the battery pack alone can cause excruciating pain. Im still struggling to eat months after removal due large thick band of scar tissue. I was on liquid diet for 3 months...had a spinal canal bleed / bedridden for months due the complications and needed Laminectomy to clean up the mess during removal. Drs have no answers yo some of my resulting issues....SCS needs to be very, very last resort in mho, i'd never recommend it. Also i have nerve damage in right leg/ foot now...

Good Luck !!

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Profile picture for anniesezu812 @anniesezu812

@lizzietish56 Pls research it carefully, i felt like you and had same diagnosis as you....and ended up far worse. No one warns you the battery pack alone can cause excruciating pain. Im still struggling to eat months after removal due large thick band of scar tissue. I was on liquid diet for 3 months...had a spinal canal bleed / bedridden for months due the complications and needed Laminectomy to clean up the mess during removal. Drs have no answers yo some of my resulting issues....SCS needs to be very, very last resort in mho, i'd never recommend it. Also i have nerve damage in right leg/ foot now...

Good Luck !!

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@anniesezu812 thank you for sharing with me. I should be grateful they I’m not worse then I am. Thank you for your share and I’m so sorry that you are enduring such pain and more. You are kind. Thank you so much. Prayers for you … ☺️🙏🏼

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