1. < Cancer: Managing Symptoms
Profile picture for Colleen Young, Connect Director
Moderator

Mayo seeking volunteers: Chemo-Induced Peripheral Neuropathy study

Posted by Colleen Young, Connect Director @colleenyoung, Aug 11 12:14pm

Mayo Clinic is seeking volunteers (patient + family caregiver) for a research study on Chemo-Induced Peripheral Neuropathy (CIPN).

The purpose of this study is to assess the impact of a family caregiver massage technique that can help cancer survivors with CIPN. Symptoms of CIPN include: Numbness/pain/tingling in the fingers, toes, hands, or feet.

You may be eligible to participate if you:

  • Are 18+ years of age
  • Have been treated with certain kinds of chemotherapy for any type of cancer at least 6 months ago
  • Have moderate to severe symptoms of CIPN

Participation involves you and a family member (spouse, intimate partner, friend, or other family member) being randomly assigned to one of three groups. Two groups will be assigned to use one of two different massage techniques via an online platform. The third group will receive standard care and is able to participate in the massage program after completing the study. All three groups will provide us with weekly reports and self-reporting of CIPN symptoms.

The functions will be assessed using surveys at enrollment, six weeks, and twelve weeks. Study participation is a total of 12 weeks. You will be compensated for your time spent in this study (up to $240).

No in-person visits are required. Massage techniques are provided online.
You do not need to be an existing Mayo patient to participate.

For more information, contact a member of the study team at (904) 953-5102 or (904) 953-8855.

Interested in more discussions like this? Go to the Cancer: Managing Symptoms Support Group.

Profile picture for stangreen
stangreen | @stangreen | Sep 6 2:50pm
In reply to @martiniusfox "Thank you very much for your response, I was sure I was not the right volunteer..." + (show)
Profile picture for martiniusfox @martiniusfox

Thank you very much for your response, I was sure I was not the right volunteer for you, just for your information, my neuropathy is definitely a side effect of chemotherapy for cancer treatment...

Jump to this post

Neuropathy is sheer hell and much much worse after completing the course of Folfirinox.

REPLY
Profile picture for wileywright
wileywright | @wileywright | 1 day ago

I have chemo caused peripheral neuropathy in my right leg. But it was 20 years ago and presumably caused by vincristine.

REPLY
Profile picture for cookercooker
cookercooker | @cookercooker | 13 hours ago
In reply to @murray3 "This appears to be a very worthwhile study sponsored by the Mayo Clinic. I had chemo-induced..." + (show)
Profile picture for murray3 @murray3

This appears to be a very worthwhile study sponsored by the Mayo Clinic. I had chemo-induced peripheral neuropathy brought on 5 Bendamustine & Rituximab chemotherapy cycles that commnced May of 2023. Unfortunately, chemotherapy proved ineffective on me and, as a result, my 6th cycle was cancelled. Since November 2023, I have been on the BTK Inhibitor Zanubrutinb.

I underwent a 2 hour EMG in June-July 2024 which confirmed my diagnosis as severe Axonial Polyneuropathy. My peripheral neuropathy is well under control now since I started regular weekly manual and electro-acupuncture treatments July 2024 from a Doctor of Acupuncture 3 hours away from me. She is currently 1 of only 5 such trained and certified Doctors of Acupuncture, Ac in all of Canada. Once my peripheral neuropathy was resolved, I then began similat acupuncture treatments for both serious lumbar spine issues as well as for both of my severely osteoarthritic knees. As well as doing these treatments, I also have maintenance treatments for my original concerns (although these treatments are at a much lesser frequency now).

I would think that based upon the information I have just shared that I wouldn't qualify for the Mayo Clinic study.

Jump to this post

@murray3 Hi Murray,
Where are you in Canada that you received this peripheral neuropathy treatment? I'm in BC.

REPLY
View MoreView Less
Please sign in or register to post a reply.