← Return to What I Learned From My Open Heart Surgery

Discussion
Comment receiving replies
Profile picture for mbharris @mbharris

@brumasterj Thanks. I too was pretty active before HCM hit me as well. I used to scuba dive, go on hikes with the wife and dogs, and even enjoy working in the flower beds pulling weeds (maybe not that) 😀. I have been on Camzyos for almost two years and it has given relief, especially as I have stepped up the dosage, but it never relieved the symptoms. I’m so ready to stop thinking about my heart issues, being out of breath and dizzy at times, but even feeling the beating and skips of the heart. The septal myectomy procedure sounds pretty straightforward along with recovery in the hospital. As you know with HCM you always seem tired and not able to feel recharged even when resting from a day off of work. So I know recovery at home will take some time but not looking forward to having unwanted pain and all this walking after surgery I’m hearing about. It’s part of it I know but…are there any things I can do to help speed it along?

Oh also curious, stopping Camzyos prior to the procedure did HCM symptoms seem to get worse than prior to starting? I have four weeks to surgery and trying to figure how things might be before then. Thanks

Jump to this post


Replies to "@brumasterj Thanks. I too was pretty active before HCM hit me as well. I used to..."

@mbharris i promise thenpain is bearable it sux but its bearable the worst part of the pain for the first 4 weeks is getting in and out of bed but once ykur settled in bed your fine until yku need to move again:(
But the discomfort is so worth it! Your dizziness and short of breath will go away so should the irregular heart beats at least mine went away the heart beats i dealt with for about two weeks after surgery they acdounted to having an angry heart
After stopping camzyos the symptoms started slowly appearing about 4 weeks off of it then 3 days before surgery it reared its ugly head with a vengeance, while in rochester we rented the scooters to get around we had no real need for a car rental the scooters made it fun:)
After your released no scooters just walk to a close place to eat!
You have been thru the worse so a little pain will be so worth it!
I belive bu the second day i was off the hard meds and just taking tylenol!
Work with your breathing meter they give you it might help to have ykur meds while doing ykur breathing practice i never did though!
You will be fine I promose:)