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@mbharris dont hesitate to reach out to me if uou need to visit!
Im 57 been dealing with hcm issues for a number of years till they finally diagnosed me last dec!
Im very active mountain bike hubting walking hiking, used to run but side effects from HCM stopped me from running and finally started slowing me way down on my bike before i finally found out what was wrong! Camzyos helped to an extent but would not allow me to ride hard!
Had surgery in june
Stayed across street from hospital we was told to plan for 14 days ended up staying 11
Been off work for 5 months the pain in my chest just never got better had a CT done two days ago and my sternum never fused!
So waiting to see what mayo would like to do!
Please dont let that scare you from having the surgery because i could tell a difference as soon as i started climbing stairs!
Im just one of the very few un lucky ones the sternum did not fuse!

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Replies to "@mbharris dont hesitate to reach out to me if uou need to visit! Im 57 been..."

@brumasterj Thanks. I too was pretty active before HCM hit me as well. I used to scuba dive, go on hikes with the wife and dogs, and even enjoy working in the flower beds pulling weeds (maybe not that) 😀. I have been on Camzyos for almost two years and it has given relief, especially as I have stepped up the dosage, but it never relieved the symptoms. I’m so ready to stop thinking about my heart issues, being out of breath and dizzy at times, but even feeling the beating and skips of the heart. The septal myectomy procedure sounds pretty straightforward along with recovery in the hospital. As you know with HCM you always seem tired and not able to feel recharged even when resting from a day off of work. So I know recovery at home will take some time but not looking forward to having unwanted pain and all this walking after surgery I’m hearing about. It’s part of it I know but…are there any things I can do to help speed it along?

Oh also curious, stopping Camzyos prior to the procedure did HCM symptoms seem to get worse than prior to starting? I have four weeks to surgery and trying to figure how things might be before then. Thanks

@brumasterj I am sorry to read that you are having a complication. Our lucky hearts had traumatic experiences and this, too, I am sure will be dealt with successfully. Keep us informed.