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Anyone have pain after BCG Treatments, especially with urination?
Bladder Cancer | Last Active: 10 hours ago | Replies (69)Comment receiving replies
Hi everyone,
Thankyou for all the comments & suggestions. My latest Cystoscopy showed 2 areas now with high grade CIS. (NMIBC) I start BCG treatment 3 weeks from Cystoscopy date. (Note; I was treated for small cell bladder in 2024 with chemo & full pelvic EBRT)
After each 3 month Cystoscopy I appear to get flare ups of radiation cystitis and frequent irritable bowel issues. This takes a good 2 -3 weeks to settle down. Plus slow healing from ongoing myelosupression. My question is should I postpone BCG treatment if I have symptoms of the radiation cystitis. I feel I am going to put myself through a more painful 6 weeks. Any suggestions would be appreciated
Replies to "Hi everyone, Thankyou for all the comments & suggestions. My latest Cystoscopy showed 2 areas now..."
@janine1991 I don’t know if there is a right answer, I do know that the pain I had with the last three BCG treatments was unbearable I have said multiple times I could not would not do it again, thank God my last cystoscope was clear my suggestion would be do what is needed. If it becomes too painful can you not always stop?
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@janine1991, that's a great question. I'm tagging @scbil @sparkyconnect to see if they can share anything about their experience with radiation cystitis and treatment timing.
Janine, is your oncologist and symptom management nurse aware of the cystitis and your concern about starting BCG treatment in 3 weeks?