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Polycythemia Vera: Just been diagnosed

Blood Cancers & Disorders | Last Active: Jan 18 2:47pm | Replies (470)

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@nypara66 thanks so much for all the info it seems all the replies I’m getting are from the US so I’m wondering if anyone in Ireland has been diagnosed with PV ?as I’d love to hear from you !!! but the one thing I’ve noticed is that we all seem to be getting the same treatment which is reassuring as I would have thought you might have newer drugs in the US thanks again for all the info it’s reassuring to know I’m not alone in dealing with this

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Replies to "@nypara66 thanks so much for all the info it seems all the replies I’m getting are..."

@roughanne Even though it’s such a rare disease, this site has brought us together and I am grateful not to feel so alone also!