← Return to Guidance re. stem cell transplant in 70s (MDS and CLL)

Discussion
Comment receiving replies
Profile picture for mgol @mgol

Thanks all for your commets.

@alive. I'm glad to read that your transplant was successful. Can I ask if you've had ongoing complications (e.g. chronic GVHD) in the decade since? My hope is that my mum will still be with us in a decade, and that we'll be able to travel again together and do all the things she can't easily do now, with her cancer defining so much of her life. But I know that's probably a fanciful wish considering her age, her two blood cancers, and the potentially complicated road she'll have to recovery if she does go for the transplant.

@janetlen, you mean to say you have just had your donor cells tranfused 4 days ago? I hadn't quite expected to get a reply from someone in the midst of a transplant right this moment! I hope you're coping well?

@saga2, have you been offered a transplant? My understanding is that they are much better nowadays at getting older patients through them, with reduced chemo regimens in the lead-up to the transplant and better medicines to manage complications afterwards. But it's still a very scary prospect, and I was in truth a little surprised at how freely it was offered to my mum. My dad and I would be my mum's caregivers if she decides to have the transplant. It's not my place to comment on your family situation, but I'm sure your family would want to support you through a transplant if they thought it provided a meaningful chance of a cure.

Jump to this post


Replies to "Thanks all for your commets. @alive. I'm glad to read that your transplant was successful. Can..."

@mgol It isn't easy but with the anti-nausea and diarrheal meds plus the assorted other drugs, I am getting through this.

@mgol I was diagnosed with skin GVHD 5 years ago and now my doctor is weaning me of immunosuppressives. In my experience, my chronic GVHD has been mild compared to the first year immediately after the transplant. I had a lot of complications during the first year. Now my immune system is working normally and my doctor is hoping to have me off most of my meds sometime next year.