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Been to an Epilepsy Monitoring Unit? What’s it like?
Epilepsy & Seizures | Last Active: Nov 21 1:02am | Replies (61)Comment receiving replies
@santosha Thank YOU So Very Much, Chris! I Deeply Appreciate Your Kindness.. I Definitely Needed To Read This Today! One Of The MOST Painful Side-Effects Of Brain Surgery Has Been The Way People That USED To Be My Close Friends Suddenly Decide To Be SO Cruel To Me… Because I AM NOT THE SAME PERSON I USED TO BE BEFORE THE BRAIN SURGERY…. At Times Like These I Honestly Regret Having Tge Surgery. Believing I Would Have Been Better Dying While I Still Had Kind Friends In My Life.
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@lauragal
I'm so sorry to hear that people who were once good friends became cruel to you. That must hurt so much.
After my epilepsy diagnosis and during periods of poorly controlled seizures, some people distanced themselves from me. I was heartbroken about it at first, but eventually I realized these people weren't really true friends. Today, I'm actually the one who no longer wants to be close to them. Real friends are the ones who accept us just as we are. My epilepsy showed me who my true friends really were.
On the bright side, I've met other wonderful people in my epilepsy journey who know about my condition and have genuine respect for it and for me.
Have you been getting any psychological support to help you through this and other challenges after your surgery and that come with epilepsy? It has helped me tremendously. Don't face this alone!
Please remember that epilepsy does not make us less valuable. On the contrary, it shows the strength and courage we carry inside us.
I'm truly glad my words brought you some comfort, and I hope these do too. 💜
Chris
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