← Return to Doctor Recommendations for Chronic active Epstein–Barr virus (CAEBV)

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@sueinmn I was diagnosed with EBV roughly 10 years ago. Also now in Stage 4 kidney failure. I also get told there is no treatment for it, but have developed extreme sensitivity to heat and also have CFS. I take a lot of vitamins which seem to help some with the CFS but there are times when I still sleep 16 hour days. Last year my dr found that my blood tests showed my light chains were off, and I also tested + for SGA (Schogrens A but not B strain). Went to specialist for that and was told no It was a false +. so again no answers. I too have a lot of teeth pain that comes and goes with no explanation. I see a chiropractor regularly to help with my jaw and neck and back pain.I have been doing lots of googling and saw an article that stated EBV was in the same family as the herpes virus (cold sores), which I also have. Yet there is a treatment for that with Zovirax, so wondering if that would/could help with EBV? Plan to ask my dr that next visit. Really tired of not being able to do anything much like I used to do.

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Replies to "@sueinmn I was diagnosed with EBV roughly 10 years ago. Also now in Stage 4 kidney..."

@mr117 I can understand your frustration with always feeling tired, it is a common issue with chronic illness. asking your doctor is absolutely the right approach, as your full health history helps determine the appropriate treatment for you. Members of Mayo Connect are fellow travelers in your health journey, not medical professionals.