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Gross hematuria (blood in urine): Can't find cause
Blood Cancers & Disorders | Last Active: 4 days ago | Replies (34)Comment receiving replies
@tobytink
Hi I've been off this site for awhile. Still having these episodes of hematuria. This time it's been 18 days. It seems each time gets a bit worse, lasts longer. I get no answers or much real concern with local drs. Am thinking of going to Mayo and see if they can help. Anyway hope you are doing well.
Replies to "@tobytink Hi I've been off this site for awhile. Still having these episodes of hematuria. This..."
@carolak
I can't believe your doctors aren't concerned. They should at least tell you WHY they aren't concerned. I think going to Mayo for a 2nd opinion might be a good idea. You have had this a long time, and you don't need the added stress carolak.
Will you please stay in touch? I'm wishing you all the best!!
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@carolak
My friend was diagnosed with CAD-(Cold A gluten Disease) very rare blood disorder as a result of blood in her urine. She also has Renard’s (finger tips get cold and turn bright red) and lymphoma. Whether all are connected I do not know. You may want to ask your MD to test for CAD. Just a thought!