Idiopathic Thrombocytopenia: Anyone had platelet randomly drop?

Posted by memawof4 @memawof4, Nov 1 12:47am

Not to make this any more complicated than I already am, but has anyone ever had their platelets just randomly drop for several months (about 3-4) for absolutely nothing reason and then go back to normal?
I did just recently have steroid injections in hands and then last week in my back, so they are currently back to normal. However, I can always tell when my platelets start to drop. I start randomly bruising, and I bleed more easily when changing out insulin pump sites or blood draws.
I have not been sick, and not taking anything different.
I do current have another appointment with a specialist to further explore. I’m just curious if anyone has had the same experience as me and it was nothing, or it was something more and I just have never noticed till now.

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catherine1290 | @catherine1290 | Nov 2 6:58am

I also have thrombocytopenia and have been gradually dropping for several years. I see a hematologist every 6 months. There is no plan to do anything about it until I drop to 15 ,000. After being tested for everything, no reason has been found. Yes, I bruise if I barely touch anything. I take Vit K supplements and that slows the bruising a bit. I have no helpful advice. Good luck!

jacklyn | @jacklyn | Nov 3 6:14pm

Has your hematologist suggested to do a bone marrow biopsie. This will confirm whether you have pa blood promblem.

steveutnv | @steveutnv | Nov 4 8:28am

I've been seeing a hematologist for about ten years (every 6 months) initially for thrombocytopenia and then he diagnosed MGUS. He has told me he's planning on a bone marrow biopsy at some point but hasn't done it yet.
Male 78. My platelet count is about 20, so I bruise very easily. I've also had two brain bleeds from hitting my head.

cmgreen1 | @cmgreen1 | Nov 5 11:02am

Hello Steve, I am a71 year old with MDS patient with Genesis Cancer Institute. Recently I was changed to Dacogen infusions and after the first round my platelets dropped to 9 and was send to the hospital for a platelet infusion. I would be asking why your Dr hasn’t prescribed this given the fact that you have had 2 brain bleeds. Brain bleeds are no joking matter and should be addressed. I wish you the best in your recovery.

katgob | @katgob | Nov 5 11:45am

In reply to @steveutnv "I've been seeing a hematologist for about ten years (every 6 months) initially for thrombocytopenia and..." + (show)

@steveutnv
Are you at a reputable cancer hospital? I would like to know why he has not done a BMB with your platelet's numbers so low. Being here on Mayo Connect, but treated at City of Hope, I know i must advocate for myself. I hope you ask for a BMT or more to check where your body is in real time.

steveutnv | @steveutnv | Nov 5 7:19pm

I see my hematologist is December.

Colleen Young, Connect Director | @colleenyoung | Nov 14 8:11pm

@memawof4, have you seen your specialist in the meantime? What did you find out?

billiedon | @billiedon | Nov 15 12:40pm

That is the nature of this condition. Constant ups and downs. It happens to me all the time.

dax1million | @dax1million | Nov 16 2:06am

My husband was diagnosed with myelofibrosis in January this year2025. His platelets stay low most of the time he has had 79 platelet infusions since Jan. He had 3 month round of chemo Vidaza, which helped for about a month. Then it was right back down again. He is now on Vonjo which helps with one infusion a week, where it has been twice a week for months. We keep praying for healing. I agree with other post a BMB would take some of the guess work out of your diagnosis. I wish you good results. Keep the faith!

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