Erosive oral lichen planus

Hello. I just finished taking prednisone 40 mg daily for 4 days (for a different issue) & my mouth has cleared up for the most part for now. Have you tried that? Do you have a primary care doctor who you can discuss this with or have already discussed the issue with? Or perhaps an oral surgeon? Maybe you could take some information in hand with you on steroids & treating OLP if you see a doctor. I have suffered for going on 5 years now with erosive LP. In the beginning I lost 30 lbs because I couldn’t eat much. Someone mentioned a few weeks ago on the post about calcium helping them so I’m currently trying that only because I remember last year starting on calcium & improving- but I attributed it to a soup/juice cleanse, chiropractor, etc. Looking back now, I see it could have possibly been the calcium. I have started back on calcium & am hoping this is part of an answer. But a large dose of steroids has helped me tremendously. It took this big dose for 4 days because I was on prednisone 2.5 mg daily for a year & it didn’t do anything. Neither did topical steroids applied topically in mouth. Hope this helps.

I have also used an Rx compound of lidocaine & dexamethasone that helped. It was ordered by my dentist & filled at a compounding pharmacy. My primary care doctor has also ordered plain viscous lidocaine for me to use topically. I put the liquid in an oral syringe (like for kids) so I can then just put a drop or 2 on the erosive lesions.

@ grammlyn OLP is treated with steroids, not always huge amounts. The right doc might be ENT or even dermatology. Try calling a medical school and get reference.

I’m just mentioning what worked for me recently was a pulse dose of steroids. Obviously one wouldn’t want to take a pulse dose of steroids chronically because it’s a pulse dose. For me recently, a small dose of steroids didn’t work either. I’m not sure a dermatologist would be skilled or proficient in treating OLP. Especially if a biopsy on an oral cavity was needing to be done. I would only recommend an oral surgeon for that if need be. An ENT might be useful, especially if mucous membranes are involved in the nose.

@fancyrph I went to an ENT, he recognized OLP (under tongue), treated with a couple of (light dose) steroid shots, and it went away.
Can you explain what a "pulse dose" is?

I have seen specialists all over the country and New Zealand. One of the best doctors I've encountered was Joanna Badger at Stanford Medical Center. Here is a link to her information -https://stanfordhealthcare.org/doctors/b/joanna-badger.html?ecid=glocalsearch-ls-google-doctor-all-JoannaBadger

Good luck. As mentioned in this discussion group frequently, clobetasol applied topically helps and dexamethasone mouth rinse helps. Steriods cause many other problems and I will not take them any longer. I'm 69, was diagnosed when I was 30.

If you're on the East Coast I highly recommend Dr.'s Mieller and Garber at the University of Maryland Dental School in Baltimore. They helped me a great deal and I have my oral lesions under control by using clobetasol creme. We had trays made, not unlike retainers, that extend onto my gums. I apply the creme, cover my teeth and gums with the trays and do this for 15 min twice a day. It works!

Hello @ibclng, welcome to Connect. There is another discussion on Connect where your post may receive more visibility and you can meet other members discussing oral lichen planus. I'm tagging our moderator @ethanmcconkey to see if we should move your post to the following discussion. In the mean time you may want to read through the discussion and post any questions you may have.

> Groups > Autoimmune Diseases > Erosive oral lichen planus
-- https://connect.mayoclinic.org/discussion/erosive-oral-lichen-planus/

Are you able to share anything you have already tried for treating your symptoms?

You may also want to listen to the following Medical Edge Radio episode, where Mayo Clinic Dr. Phillip Sheridan discusses a condition known as oral lichen planus -- https://newsnetwork.mayoclinic.org/discussion/treating-oral-lichen-planus/

Can anyone gave me insight on Lichen Planus. I was told I have this but not how a help with the symptoms.

Hi @ibcing I want to join @johnbishop in welcoming you to Connect. Per his suggestion, I moved your post to this existing discussion on lichen planus so that you can connect with others with this condition.

I wanted to introduce you to fellow Connect members @jshdma and @fancyrph as they may be able to offer you support.

Back to you @ibcing, what symptoms are you experiencing right now?