Erosive oral lichen planus

@jshdma I heard the same thing about OLP 10 - 15 years ago. My mother had lupus. Cortisone relieves symptoms but long term causes huge problems. I will ask an oral medicine specialist here in NZ about BMS when I see her next. I'm a patient rep on a committee she is on. She is not the sort of person to give up on people.

@alpaca- thank you very much. I live in New York City area. I recognize the response that these things [OLP and BMS] are "very difficult to treat." But I will try anyone who will thinks it can be done. The problem must be that the cause is not known and no one will research it.

Hello@jshdma Here is a recommended oral medicine specialist in NY. My contact is a dedicated oral medicine specialist with both dental and medical quals. She recommends seeing such a person for OLP and BMS. You might already know all this! It's just that Kim, my contact here in NZ, is not the sort of person to wash her hands of people in distress so I tend to listen to what she says.( I don't see her as a patient but as consumer rep on a hospital committee.)

I have Oral Lichen Planus which is the immune system attacking tissue under the tongue. The Lichen Planus spread when I was under stress in the
last 4 weeks and has anyone heard of a cure for this condition. I had this under my tongue on the right side in 2016 and it turned into cancer.
When we had a family emergency, my children nor I realized the stress would create lichen planus on the left side under tongue, It has become
to painful to talk or chew food. I was doing great until the stress hit, really getting better as unbelievable as it was to the doctor. ENT Surgeon.
HELP!!!!!! anyone. The type of lichen planus I have is not virus related.

I too have had oral lichen planus under one side of my tongue for many years. Last year I was diagnosed with chronic kidney disease and the nephrologist rx’d Calcitriol to supplement OTC vitamin D that I was taking for osteoporosis, even though my calcium level was normal. A few weeks later, I noticed that my lesions were much improved. Mentioned this to my dentist (who first discoversed it) and he asked if anything had changed in meds and the only thing was the Calcitriol. I definitely credit this med with relieving me of all symptoms. It was a beneficial side effect for sure.

What resources would Mayo Clinic-MN have for evaluating L.P.? I have had to educate my local health care providers on the condition. At this point I would like to deal with a specialist instead of working my way up through the health care hierarchy. I have oral and vaginal involvement and now I suspect esophageal issues. I’ve dealt with this for about 4 years and I’m still waiting for the spontaneous remission!

What side effect to you have with esophageal LP. I have oral LP and Vaginal sclerosis. I have had issues with ears, nose and hair.
I have recently had problems swallowing.
When I am stressed and have an outbreak it is awful. 12 years of searching for right doctors. I think I have found right doctors and treatments.

@march13 Please tell us about the right treatments (and doctors, if you can). Glad someone has gotten rid of this evil condition (I mean "Satanic").