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Questions about Dr. Bruce Patterson's program
I have been struggling with severe fatigue and PEM as my main symptoms since 2022. I'm 80, live in Indiana and was in great health before Covid struck. I had a short bout of CFS in my 40s and suspect this has a lot to do with what I'm going through now.
I'm interested in knowing more about Dr. Patterson's program. I've read his lab's website, but when filling out the form for bloodwork, discovered I needed to add a local physician, though it says my doc is not required to collaborate. I've also seen the announcement of his new Long Covid Clinic in Traverse City, but I've found no way to access it. My guess is that it will operate the same way. I have questions before deciding to go ahead, but these have gone unanswered through the lab's website. I'd appreciate it so much if anyone has answers to some of these questions:
1. Does Dr. P supply the medication? If so, does he combine the 2 (Lipitor and Maraviroc) or are they separate?
2. Does everyone get the same meds? Is there flexibility for dosages?
3. Who do you work with if you run into problems with side effects? Do they provide easy, quick access and how responsive are they for problems or questions, or maybe this why you need your own local doc?
4. What is your local doc's role in this?
I ask these questions because I tend to be very sensitive to meds and wonder if Dr. P is at all flexible, as in starting with lower doses if the meds are separate? Also, I have an appt with a new doctor of integrative med in Indy in a few months and wonder if I'd best wait until I see him and use his name. This would depend on what role he would play in Dr. P's scheme of things. My regular PCP does not have any familiarity with Long Covid treatments. (Also, maybe Dr. P will have some results from his stage 3 trial by then!)
I am grateful to this group for all the information shared and support and encouragement it provides. I hope you will be able to provide some answers and insights into Dr. Patterson for me.
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Part of my attraction to the Traverse City location is, like you, I have a friend who lives there. Since I live in MI, it's more convenient than other centers. Interesting that the blood test is more expensive other places. Thanks - any more input is more than welcome!!
@lizzyn Could you describe your protocol with Dr Patterson, please. Was shortness of breath a previous symptom? Thank you, Lucy
"Dr. P's scheme of things"..you may have just answered your questions about 'Dr P'...good fortune finding someone.80 yrs old.That's sayin somethin.Stay committed.
Sounds like the healers dropped the ball on the first test.No call-back?And you'll be paying for all this...
@lizzyn wow, that is great news! I just started the SHINE protocol from the book by Teitelbaum and it seems to be helping, especially with sleep and energy. Someone on this board mentioned the book not long ago, so thank you to whomever it was for that resource. I had used the protocol previously for fibromyalgia years ago. Best of luck healing to us all!
@mikesixtysix I concur with your response.
I too worked with Dr. Patterson, starting with another Doctor on his team who ultimately handed me over to Dr. Patterson when my progress stalled from test #2 to test #3. Testing still showed inflammation (the root cause of everyone's symptoms). Dr. Patterson got to the place where he said "we should test you for chronic Lyme and mold illness". I tested negative for Lyme and positive for Mold Illness - Mycotoxins (the root root cause of my symptoms). I would urge all LC sufferers to test for Lyme and Mold Illness, many many symptoms are crossovers and add confusion to diagnosis. I have spent days reading articles and watching YouTubes and many Doctors believe a huge number of LC sufferers actually have Mold Illness, it is not directly LC!
Dr. Patterson hypothesized that the vaccine suppressed my immune system allowing mold spores to do their dirty work and infect my body.
I am both angry and grateful. Angry that the dozens of medical professionals (Roper, MUSC, Mayo Rochester) across 4 years that none of them thought to test me for mold illness. Grateful they tried, but failed. From the beginning some Doctors called my journey "the journey of what it is not". Grateful to find Dr. Patterson who walked me down that path. Grateful to take Dr. Patterson's test which was the first test that showed abnormalities and not 'normal, normal, normal' that so many of us write about. Grateful that Dr. Patterson found the 'murder weapon'.
Now I am in the difficult journey of finding Mycotoxin treatment. It isn't easy. There is quite a bit of dissension in the medical community about whether or not mold illness is real (sound familiar???) and what treatment protocol is the right treatment protocol.
I will persist, I will find treatment, and I will heal and be back to my old self beginning in December!!!
Best to all of you on your wellness journey.
It's the mold, stupid!
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3 Reactions@arichards3 spot on. the conventional mainstream medical community is little help when it comes to things like lyme, post covid vaccine syndrome, long covid, and mycotoxin poisoning.
but thanks to open minded, forward thinking, and smart doctors like Dr Patterson, there is some hope.
i'm on binders including cholestyramine and a detox regimen and relief therapies to try and get ahead of this. it's also important to identify the source of the mycotoxins and remediate it.
it's a long and winding road. best of luck!
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1 Reaction@arichards3 This clinic in Oregon does mycotoxin testing with a focus on Mold and mycotoxin exposure. Tests of the urine have been revealing 'fungi' that is impacting Mycotoxins in the body (not blood testing) Doctors are naturopathy and they seem to work with Dr. Patterson: https://portlandclinicofnaturalhealth.com/spike-protein-ace2-receptors-and-the-immune-fallout-of-long-covid-why-root-cause-medicine-matters/
Wow, am I getting an education! Thanks to all of you who have chimed in.
I just had my house tested for mold, because we discovered there had been standing water in our crawlspace, which in the past had always been dry. I am waiting for the lab results for the house, but the inspector definitely saw mold in the crawlspace. So we will be doing remediation there and have already put in a sump pump.
Now I'm wondering how much of what I've been going through for the past 3 years is due to mold illness that has been having a party in me thanks to Covid/Long Covid. How does Dr. Patterson test for mold? Does he use a blood test for that? Someone said a blood test misses the mycotoxins. Can others do the same urine test as the Portland Clinic? Can any lab (local) do the test?
I can't start with the Dr. of Integrative Medicine for many months, but have an intake appt in Dec. Maybe I can ask them to do the test in the meantime, if I knew what specifically to ask for. If only things could be simple!
This was the test, it's a urine test, and you don't need a prescription for it:
https://realtimelab.com/mycotoxin-testing/
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1 Reaction@mikesixtysix Was this LDL lowering drug prescribed to reduced a specific Mycotoxin in your gastrointestinal track? Apparently the types of fungi in the families of Mycotoxin is extensive so I'd be interested in knowing if a specific one was identified by Dr. Patterson. I've ordered the kit to be sent to my home for the Mycotoxin test to get this path started.