Anyone lost the ability to walk due to peripheral neuropathy?

@carolynhughes75
Hi just letting you know I have taken Lyrica on & off since 2000 for RLS and Gabapentin but it was no good for me. I have been tested for Dementia and I am AOk. @wenner

@wenner
So glad that it didn't negatively effect you. I wish doctors would stop pushing it so much.

@771 So sorry to hear! My husband too has had no relief from dozens of creams, various therapies, etc. He used to get steroid injections in his back, but had to stop because he was recently diagnosed with prostate cancer. I wonder if the steroids were actually counterproductive...... best regards...

Please use LDN ~ Low dose naltrexone for pain ~ not for numbness.
It works & has been discussed here many times. Check it out here:
https://ldnresearchtrust.org/sites/default/files/2020-04/Dosing-Info-a4_0.pdf

@ray666 Good Morning Ray. We have a beautiful sunny morning here, what is
your weather like?
I was way out thinking we had the same symptoms etc. Are you still without any pain? What a blessing hey? Like you I had never heard of PN but Mr Google filled me in. I'm in a dead end street, but then I have read some amazing stories on this site, so anything can happen. Thankyou for sharing with me, it's not so scary when you can chat etc. Hope your day is as good as here. Bye Wendy @wenner

Good morning, Wendy (@wenner)

This is a favorite time of year. Clear days, but with a hint of winter coming on. When I first moved out here, every winter seemed like a record-breaking winter. I lived my first two years in the mountains at somehing just shy of 10,000'. I'll never forget January 1971: the daytime temperature never rose above MINUS 20°! Now that was a winter! 🙂

Cheers!
Ray (@ray666)

P.S. Still no pain.

@rjack6618 hi please post your results of your tests and let me know his recommendations as i have had similar test and still can’t walk or stand thanks

@ray666 Morning Ray, No pain what a blessing that is. I've had to buy a small indoor motorised wheelchair to get me around in the morning as I just can't walk. I've have breakfast then meds and a couple of hours later I can use my sticks inside. Small wheelchair is good in shopping malls etc.. zip here and zip there. That minus temp of yours I just can't imagine, however do you keep warm, I've been up around that area, but in June -July. I did it with a travel group, train and bus from one side of America, up to Canada on the way to the other side of America. Loved it, needless to say well before PN knocked on my door. How about 42° recon you could handle that with humidity the last 4 to 5 years. We will be in trouble for not sticking to medical, will we?? Toodle-loo Wendy @wenner

I have idiopathic peripheral neuropathy.
I have tried almost everything and nothing has worked.
I am looking for trials being conducted at a hospital on stem cell therapy.
If anyone knows of any please let me know.
Fran

My husband had pn that moved from feet to chest and was finally diagnosed (after 4 years) with a rare b12 deficiency ( sub acute degeneration of the spine which then led to transverse myelitis. You can have normal levels of b12 in blood but it isn’t in spinal fluid. The treatment was daily b12 injections. He lost the ability to walk. Don’t know the cause of your pn but wanted to alert you and others to this illness. There are only two hospitals that are studying this and test for it. Mayo and UCSF.