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Erosive oral lichen planus

Autoimmune Diseases | Last Active: Jan 19 4:18pm | Replies (231)

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@dreamer60

Hi new to the group. Diagnosed with erosive lichen planus in June 2018 after dealing with it for nealy 10 years. No dentist or doctor could figure out what this was. In June I found a new dentist, she diagnosed it, gave me a ton of info, suggested as much organic food as possible, little to no sugar, and check my vitamins. She gave me a steroid script for the lesions and an incredible mouth rinse containing lidocaine for the rest of the mouth pain. I found a company that sells a vitamin b mixture that has healed my mouth by 85% since June. Based on the previous comments, I need to check my vitamin d levels as well.

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Replies to "Hi new to the group. Diagnosed with erosive lichen planus in June 2018 after dealing with..."

@dreamer60 This is an interesting story. Treatment of LP is 99% the steroid, rather than all the other things you mention. The problem with steroids is that they can cause serious side effects, some down the road. LP can also progress to burning mouth syndrome (BMS), which is also something that the medical profession seems to know nothing about and declines to bother with. Top specialists in oral pathology in NYC tell me there is nothing you can do. Both these conditions are in fact wide spread and doctors just seem to ignore them.

So nice to read good news!@dreamer60! Thank you

@dreamer60 Hi that must be so painful I found a website that is about EOLP it is rarediseases.info.nih.gov/oral lichen planus. This is a naturel remedies that might help as long term steriods arent good for you.