Erosive oral lichen planus

PS. Some of the creams stop lichen planus from spreading but we risk cancer, because it slows down the "T" part of the immune system from attacking
and that is the one that fights cancer.

Frankincense is an oil that fights inflammation naturally. I use it mixed with the best coconut oil available
, cold pressed, organic, etc. , and use it instead of cream and lotion. I also take it internally. I buy this empty capsules at the organic store in town, and put a dab of coconut oil and two drops of sacred Frankincense from Young Living, the best quality, and take a capsule every day. I understand it helps fight inflammation, which is the main promoter of cancer. I hope this helps. Loli

A few things I failed to share with you re: the Budwig Protocol. smoothie......use raw Baby Kale can be found at Kroger Grvocery.
Food Grade Frankincense is high in electricity as our body runs on electricity. (See John Hopkins alternative medicine) I purchase
from Lina Hall ,Health Food , Madison Heights, Va. these are important items. Budwig Protocol ,Frankincense, and prayer for my
condition by myself and prayer warriors. These I give God glory for He wants what is best. He goes before us and gives wisdom.

Frankincense is very strong (food grade) would I mix one drop of Frankincense with 2 parts coconut oil and put on the area of inflamation from lichen planus under my tongue. My issue is the acid in my stomach is making the inflamation worse also

Dilute the frankincense more to start with, in coconut oil, and maybe take it internally in a capsule. Look into correcting your gut also.

Hello @lima, welcome to Connect. I'm sorry you are struggling to find help for a treatment for your condition. I'm tagging our moderator Kanaaz @kanaazpereira to see if she can move your discussion to the following discussion so that you can meet others with similar symptoms and your post will have more visibility.

Groups > Autoimmune Diseases > Erosive oral lichen planus
-- https://connect.mayoclinic.org/discussion/erosive-oral-lichen-planus/

Also, I saw the following clinical trial that may be of interest to you.

Mayo Clinic - Valchlor in the Treatment of Lichen Planopilaris
-- https://www.mayo.edu/research/clinical-trials/cls-20387109

John

My name is Beryl and I read your very sad email today .....we all know how horrible it is to have one of these "things" and how much suffering you have been going through....

I know if possible you will get help if you seek it from the Mayo Clinic , and you will get people in similar trouble as you trying to help you .....good luck , onwards and upwards ......Beryl

Thank you John @johnbishop

I worked at a pathology lab for 22 years. we were all exposed to excessive formalin. In 2017 I was diagnosed Lichen Planopilaris. I have been losing my hair rand my face gets swollen and red. I have been on Hyroxychroquine for 1 1/2 years and cyclosporine for 10 months and I get shots on my scalp once a month.My ANA has been negative so far. My doctor started reducing my cyclosporine from 3 tablets to 2 tablets a day and I feel my hair loss is coming back. I am very miserable. Please help. any advice is appreciated. Thank you

Hi @lima,

I moved your discussion Lichen Planopilaris and combined it with this existing discussion. As @johnbishop suggested, it would be beneficial for you to be introduced to the many members who have discussed much of what you are experiencing.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.

I'm glad you've connected with @beryl, and I'm confident that @ethanmcconkey @elizabethbryant @loli and others will also return with some more information that might help you.