I am looking for others diagnosed with microscopic colitis

@ndough
Wow I never thought of heat!
We live in AZ so it's definitely hot here!
Thank you I will watch next summer and see.

@rebe410
Why can't they figure this thing out?! I feel like you basically have to give up most of the pleasure in eating and still...
I'm always cold so heat is not a trigger. Of course, I haven't been off Budesonide since I was diagnosed and prescribed. I did every other day for awhile and now I'm trying every two days. I have yet another UTI today, going to urgent care. I wonder if that's related.

@janstur

If you are having issues then I would say a UTI is related.
They can't figure it out because they don't have the research money. Nobody wants to talk about these issues!
So you have never tried not taking Bedesnoide?
How much do you take daily?if you are going to try not taking it make sure to taper if you are taking more than 3 mil.
I agree being careful what you eat is boring!
Good luck at urgent care!
My sister gets something from CVS that makes you pee pink but says it helps with UTI's. Might ask the pharmacy after you get well.
B

@janstur Having a uti usually means taking antibiotics which can upset our gut micro biome.

I had a lot of uti’s before I was ever diagnosed with MC. I started taking a product called Uqora. I have had only 1 uti in the past few years so my experience with Uqora has been helpful.

I’ve also been taking Florastor probiotics. Some say probiotics make their MC worse.

I’m pretty sure I will have a UTI by the time my current flare up goes back into remission. I don’t want to take antibiotics now because they’ll go right through me. A concern I have with other meds I have to take.

Probiotics give me diarrhea even when my MC is in remission.

Out of curiosity, how does anyone make it doable to go to doctors appointments, stores, etc. To just leave the house? When I’m in flare up, about 6 feet from the bathroom is max for me!

@ndough
I take probiotics. Maybe I should stop. I take 3m Budesonide, just started every 2 days. Have a UTI today, am getting antibiotics unfortunately. Just had Moderna Covid vaccine on Monday after years of Pfizer. Wow! What side effects! I had uncontrollable chills, headache, aches, really sore at the site. Now a UTI - having fun! Nausea. Very discouraged.

@ndough

I make the appt in the afternoon and take at least 3 pesto bushel pills in the morning. !

@janstur not all fats are equal…some people can use olive oil, but not others…

@janstur That’s a perfect storm of misery.