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@rebe410
Why can't they figure this thing out?! I feel like you basically have to give up most of the pleasure in eating and still...
I'm always cold so heat is not a trigger. Of course, I haven't been off Budesonide since I was diagnosed and prescribed. I did every other day for awhile and now I'm trying every two days. I have yet another UTI today, going to urgent care. I wonder if that's related.

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Replies to "@rebe410 Why can't they figure this thing out?! I feel like you basically have to give..."

@janstur

If you are having issues then I would say a UTI is related.
They can't figure it out because they don't have the research money. Nobody wants to talk about these issues!
So you have never tried not taking Bedesnoide?
How much do you take daily?if you are going to try not taking it make sure to taper if you are taking more than 3 mil.
I agree being careful what you eat is boring!
Good luck at urgent care!
My sister gets something from CVS that makes you pee pink but says it helps with UTI's. Might ask the pharmacy after you get well.
B

@janstur Having a uti usually means taking antibiotics which can upset our gut micro biome.

I had a lot of uti’s before I was ever diagnosed with MC. I started taking a product called Uqora. I have had only 1 uti in the past few years so my experience with Uqora has been helpful.

I’ve also been taking Florastor probiotics. Some say probiotics make their MC worse.

@janstur Of course you have an UTI. With mc, it is impossible to keep yourself clean, especially at night. The bacteria gets into your urethra and BOOM, another UTI.