Thank you for sharing this. When I was diagnosed with MGUS in June 2023 with Monoclonal protein 1.6 g/dl IgG lambda, i was told not to worry it only progresses 1% per year. By January 2024 it was 1.8 g/dl, January 2025 it was 2.2 g/dl and they ordered a bone marrow biopsy in April which presented 20-30% plasma cells, monoclonal protein and a free light chain ratio of less than 0.1 with lambda restriction. I am now in Smoldering Myeloma phase with 2 high risk markers. I had a PET/CT scan which showed some areas in both femurs and ordered a pelvic MRI September 15 which showed a 13 mm focal enhancement in my pubic bone and suggested retesting to see if it went away or increased. I am still waiting for results of the retest from two weeks ago.

At first I was full of anxiety and fear and remembered that I can choose to Forget Everything And Run or Face Everything And Rise. I chose to spend time with the people I love, do things I love to do and started limiting time and energy on things I can’t control…accepting that whatever will be- will be. I will cross that bridge when it arrives. As a “doer “ by nature, watching and waiting does not come easy to me. I want to obliterate the monoclonal cells in my blood and be free from it forever….but, I am told this will never go away and I am just hoping for the opportunity to stop it from progressing.

I send you strength of spirit as you navigate this journey. May this mantra give you comfort…

In this moment, I am safe.
My body is strong and holding me.
I do not need every answer right now — only enough light for the next step.
I am surrounded by love, even when I walk this part of the road quietly.
I trust the strength within me that has already carried me this far.