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Looking to connect with someone who has both autoimmune disease and FL
I am newly diagnosed with Follicular Lymphoma, grade2, stage 4 with a high tumor burden and history of mixed connective tissue disease. I developed serum sickness to the Rituximab and have been recently transitioned to Obtuzimab + Bendamustine. Wondering if anyone has done this regimen and if so, how long were your treatments and did you do Obtuzimab monthly as maintenance therapy? If you have a history of autoimmune disease, how long did it take you to get into remission / have you relapsed? Thanks.
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Hi Tami, I was able to find several members in Connect who have mentioned their experiences with Obtuzimab (Gazyva) and Bendamustine. This combination is used in treatments of a number of lymphoma cancers. I’ve posted the links to the discussions below. Please feel free to tag a member if you have any questions.
Earlier this year in February, @rmbruins mentioned they were beginning treatment with Gazyva for their FL. Here’s the link to that comment:
https://connect.mayoclinic.org/comment/1237962/
I found several mentions of both Gazyva and Benamustine in this search: https://connect.mayoclinic.org/search/
And finally, here’s a link to all the discussions with members who have FL.
https://connect.mayoclinic.org/search/
Have you experienced side effects with your latest treatment plan?