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Visit to National Jewish Health in Denver, CO

MAC & Bronchiectasis | Last Active: Apr 29 7:16am | Replies (152)

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Profile picture for activeaura @activeaura

I was diagnosed with MAC 2 years ago. I visited an infectious disease Doctor who said it was too early for treatment. Now my pulmonologist has said my CT looks worse but is perplexed because I am not really having any symptoms. He thinks I should be having more. Since I just turned 80 he is concerned that if i wait too long to have the treatment it might be harder to cure. My infectious disease doctor has retired. Since I go to Nevada for the winter, he had suggested I might want to get an opinion at NJH It seems from some of the posts that not only can they advise me, but they can discuss the best treatment for me. Is it correct thatwhen i see them I will follow up my own infectious disease doctor for the day to days with NJH overseeing my care. Does anyone know what the normal stay is? Can anyone give me an idea of the cost? Thank You

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Replies to "I was diagnosed with MAC 2 years ago. I visited an infectious disease Doctor who said..."

@activeaura
When I went to NJH, they scheduled me for 6 days of tests/treatment/ consults. Of course, they do nothing on the weekends, so my stay was 8 days. I assume you have Medicare. The financial department told me they bill Medicare and the secondary, and I'm responsible for the rest. Honestly, I have no idea what that would be. When you do the oral interviews on the phone, your primary doc there...maybe pulmonary, infectious disease or there, determines what you should have for testing and who you should see. You are assigned an Ambassador who makes the schedule. You are provided a copy of your schedule. It often changes. The people who answer the phone for your initial contact are very knowledgeable and kind. You can keep your doctor there for your care, or you can see your local docs. I know a woman who has a local doc but uses her doc at NJH primarily. I will not go back there unless I feel the need. It takes energy to get there, stay there, get back and forth, etc. Good luck. Any specific questions you can ask them or this site.
Roz

@activeaura I went in 2023 to NJH. I have Original Medicare and a Supplement Plan/Medigap. Other than the Original Medicare deductible I was not billed personally. The Medigap/Supplement Plan took care of the amount that the Medicare Original did not pay.
If you have an Advantage Plan you will need to see the Advantage Plan will approve your going to NJH and the cost you might be responsible for.
Barbara