@metsgirl ask them to send you the entire DVH report. They would have created it as part of the development of your treatment plan. It will show a curve (histogram) for all OARs (organs at risk) where you can see % volume by dose. You need that because your glands don’t receive one consistent dose. It should also have all of your CT slices with iso-gy contours superimposed.
Mine showed that nearly 100% of my right submandibular received over 50gy, and 88% over 60gy. So I think it’s basically toast.
Right parotid - 43% < 20gy, 75% < 40gy. So I think much of this one is coming back to life.
This is the kind of info you want. There are some studies that correlate salivary flow and improvement over time vs dosage received by the subject glands. Apply that to your own DVH and you can get a decent picture of what to expect. I can dig up the study if you want
My left glands were basically spared. Overall my salivas a bit stickier than normal but does actually seem to be improving. So it seems like my xerostomia isn’t quite as bad as yours, only been mildly annoying but something I can deal with. Dentist thought saliva flow was good enough where I shouldn’t have unusual dental issues.
I would imagine that since you got proton, they were able to spare your contralateral glands, and they’ll start to pick up the slack for your treated side. I’m assuming with that statement that you were treated unilaterally, obviously different if you needed bilateral radiation.
Keep asking and they will send it to you. I am an engineer with way too much time on my hands right now so have gotten into the details on almost everything.
@ranchroad Thanks again. I did ask for the DVH. I will ask again. After you posted on this I did some research of my own into the histogram itself and studies on the dose volume and saliva flow related to each gland. I am a recently retired university professor with too much time on her hands. So, I too, have a tendency to dig into things!
Unfortunately, I was treated bilaterally, one lymph node on each side was affected. So, that explains my more severe xerostomia. I am hoping I can regain some saliva flow. But who knows?