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Essential Thrombocythemia: Making treatment decisions
Blood Cancers & Disorders | Last Active: 17 hours ago | Replies (403)Comment receiving replies
@nohrt4me
Hobart is roughly a 3-hour drive, appointment is at 9.45 am, so hubby and I decided to go the day before and spend a couple of nights down there. Then we don't have to rush in the morning. I have had to do this before, in 2007 and 2017, so it's not new. On both trips, there were no other problems to be found. Hopefully, this trip will have the same conclusion.
My hematologist, who is also 30 minutes away, never mentions other levels of my blood tests. What should I really be looking at. Hopefully, when I go to the new Cancer Clinic next year, I get more helpful advice. Hope all goes well with Nurse Mary.
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@lynnebgraham I gather that, despite more research on MPNs in the last 15 years, a lot of info is not drifting down to clinicians very fast. My new GP, who is in her late 30s, said that she had never heard of the CALR mutation. "It's not in the textbooks." Then they're on to something they actually *do* know about. She was all over my hearing problems.
I'm all for not rushing medical trips. The days when I could hit the road at 5 a.m. and make sense to anyone three hours later are long gone.