Endometrial cancer at a late age

@inquirer My gynocological oncologist is Dr. Alison Schram...very young and supposed to be very knowledgable .. I'm alive and doing well so I must give credit to her for treating me with drugs that are working...It sounds like you are in good hands...My surgeon was Dr. Abdu Raseem. probably wrong spelling...I didn't take time to research...moved very quickly..2 weeks after being diagnosed I had surgery...The surgeon at MSK was recommended by someone my daughter in law knew. When I heard rare and aggressive..I just wanted it gone !!

Hi..I'm sorry to hear that you are struggling ...the whole thing sucks... I hope that the chemo gets rid of this monster and that you are able to tolerate it..The best thing to do is to remain positive and do what you can to stay as healthy as possible with diet exercise and sleep ! Keeping a positive attitude is very important.. my prayers are with you !

@naturegirl5 thank you !! I am so grateful to be feeling strong and able to continue my active lifestyle even though there are days when I do not feel 100% like me...it's all good and as long as the cancer keeps it's low profile ( because it's never gone)I'm happy.

@alohman08 Understood! I wanted it gone too but sat a month in extreme anxiety waiting for the right guy. Could have been a mistake to wait that long. Time will tell if any micriscopic pieces got loose. I just wanted to make sure I was in the best hands for the surgery. I would have gone under in terror otherwise.

@alohman08 Your experiences and treatments you've had and are still doing provide such helpful information for all of us. We can't do anything about the cancer diagnosis that occurred in the past. What we can do is exactly what you and everyone else here is doing. We stay aware of our bodies, we make the effort to live healthy lives and we go to all the follow-up appointments that are recommended.

I try to look at all of this as a chronic disease I need to stay on top of. No disrespect to anyone here who has diabetes which I do not, but that's how I look at this. When a person has diabetes they know it's not going to go away (well, depending on the kind of diabetes, anyway). What they need to do is follow their medical provider's recommendations which is medication, diet, and exercise.

I like what you wrote here. As long as cancer keeps a low profile although I know it's never going away then I can be happy.

@genaf
I’m more like you. No HER or significant markers for treatment options. Had recurrence to lymph nodes while still getting chemo, so declared chemo resistant. Still plugging along 3 years post radiation & brachytherapy. Our journeys are not easy. I wish you a smoother path as you move forward.

@alohman08 Do you mind sharing what your CA125 was at the time you were first diagnosed?

@ffr do you mind if I ask what type of cancer you have?

Endometrial - Clear cell carcinoma. I was diagnosed at stage 2, grade 3.

@inquirer you can ask my anything about my journey .. I'm an open book and hope that by sharing my story it will help others .. my CA125 was 10 when I was diagnosed and had surgery. Although I was seen regularly by the radiologist at MSK .. my CA125 was never tested .. when I complained about feeling bloated i was told classic IBS by my gastroenterologist.. after 5 weeks I went to local emergency room bc I knew they would do CT scan immediately and they did .. CA125 was 400 and I started chemo 6 days later. After 6 treatments CA125 was in normal range and stayed around 15,16 until summer 2024 went up to 46 by November 2024 .. scan showed very early node involvement next scan in April CA125 was 77 told still early could hold off on treatment until end of summer .. I decided to start in May and CA125 went from 77 to 43 after one treatment and has been 15 ever since ! I had a treatment today and discussed cutting dosage to lessen side effects which aren't awful just unpleasant especially thinning of hair !