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rozie83 avatar

Visit to National Jewish Health in Denver, CO

MAC & Bronchiectasis | Last Active: Apr 29 7:16am | Replies (152)

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Profile picture for blm1007blm1007 @blm1007blm1007

@rozie83 I must have lost my original reply to you. So here goes again.
I also learned 3 years that I had BE. When diagnosed and I told nurses and others in the medical field that I had BE they said they had not ever heard of it and were just as new to hearing and learning of the disease as I. So many people are just learning about this chronic disease.
Glad you will consider wearing a mask in public. Better safe than sorry. Personally I prefer the N95 mask. I bought a large quantity of them on line for a good price but don't remember the source to be able to share that info with you.
May we all find our way to being infection free. Sure not a club we wish we belonged to.
Barbara

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Replies to "@rozie83 I must have lost my original reply to you. So here goes again. I also..."

@blm1007blm1007 Hi Barbara,
I have a box of N95 masks I bought because a guy I was dating insisted I wear one to a concert we attended. I haven't used one since. I didn't find it uncomfortable, but it messed up my hair. How's that for an excuse.

Yes, most people don't know about BE and don't think much about it when I tell them. The daily routine is enough to indicate that it could be serious. And I don't have an intricate routine as of now. As I'm already 84, I'm hoping it will never get too hard.

Tomorrow my 13 year old grandson is having a colonoscopy because of a genetic disease he inherited from my son, who died from the disease. With that hanging over his head, what I have is not very significant.

Have a nice day tomorrow. Roz