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@johnwhitley how come your GP hasn’t referred you to a hematologist/ Oncologist. You should. Be seeing a specialist. I have AML now. 9 years ago I was diagnosed with MDS. I was a watch a see. My hematologist checked me every 6 minthe them every 3 months then gradually it progressed to
AML. I had a bone marrow biopsy several
Times over the years but the last one came back border line AML but still my counts were unusual but she started me on treatment called the 7+3. You go for chemo infusions in your belly 2 a day for 5 days and weekends off then Monday and Tuesday. I also take a chemo pill every day and the rest of the week when my infusions are done. I was put on vidaza and ventoclax. This is a new treatment for seniors who can’t have a bone Marrow transplant which is the only cure. The treatments are not bad. I mean my stomach is sore by the end of the week. But no nausea snd I eat well. It is not a cure but as long as the treatments work you can live longer. Also they can give you more time in between treatments from 4 weeks out to 6 weeks. They can also cut back on the infusions from 7 to 5. The idea is to put it in remission. After my first cycle I had a bone marrow biopsy and I was in remission. But I will always be im treatments. They have to find what they call the sweet spot where you do less treatments and more time in between and you stay in remission. I have the best care in oncology. They take Beth good care of me and we laugh a lot. I call it going to my new job. Good luck.

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Replies to "@johnwhitley how come your GP hasn’t referred you to a hematologist/ Oncologist. You should. Be seeing..."

Hi @jacklyn.My apologies, the doctor I refer to is my haemotologist.
I'm just not sure I need to be waiting for my blood work to get so bad before my current symptoms are treated.
I live in Australia & work in Indonesia on a six week on three weeks off roster system which makes it a little difficult to do a 7&3 weekly treatment plan.
When I go home just before Christmas I'm booked in for a CT scan to assess the size of my lymph nodes. I'm just not sure why it's an issue for him to start me on a medication routine.
Good luck with everything & take care of yourself xxx

@jacklyn I go see her once a year. I have blood test twice a year.