Concerned about the side effects of anastrozole

Posted by tinalove @tinalove, Jan 31, 2016

I completed all treatments for breast cancer but now I am supposed to take hormone blocker, named anastrozole. im concerned about the side effects. Has anyone here taken it and did anyone have hair loss?

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Profile picture for @mimi09 @mimi09

@anniez1943 I’ve never fought so hard and long to project just what you said “no one knows us better than us” as I fight both breast cancer AND a husband of 57 years who’s filed for divorce. It’s the greatest challenge I’ve ever faced. But it is what it is…the hand that was dealt me. I play each card in that hand as knowledgeably as I can every day that is left to me.
We -you and I- know what we’re capable of handling no matter what others think. We risk more than others think is safe and become stronger.
Wish we could sit together over a meal and a very long discussion. I live in SE Pennsylvania. Where are you? We could zoom??

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@mimi09 omg, your emotional plate is full. Stay vigilant and keep fighting for You. Feel free to reach out to me about anything. I’m here. (((HUGS))) Keep moving forward. You’ve got this! ❤️🥰❤️

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I started on anastrozole and was on it for about 2 1/2 years. Many do not have side effects (and don’t always join these groups so you hear mostly the bad here!) but I had pain and fatigue at first, then hair loss started after the first year. Not terrible, mostly thinning, but a topper helps. After the 2 1/2 years I was feeling about 90 even though I am a young 73. When I took a break I realized I had been in a severe depression! I have switched to exemestane in September and starting to see a little of the same effects after only a few months. I guess I am stuck like this for another 8 years, oh joy.
They say everyone reacts different so I hope for you that you can sail through with no problems!

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Did you hear that the FDA just approved a drug to help with breast cancer? The name is Trodelvy. Check to see if it applies to your treatment plan.

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Profile picture for rbarber100 @rbarber100

I started on anastrozole and was on it for about 2 1/2 years. Many do not have side effects (and don’t always join these groups so you hear mostly the bad here!) but I had pain and fatigue at first, then hair loss started after the first year. Not terrible, mostly thinning, but a topper helps. After the 2 1/2 years I was feeling about 90 even though I am a young 73. When I took a break I realized I had been in a severe depression! I have switched to exemestane in September and starting to see a little of the same effects after only a few months. I guess I am stuck like this for another 8 years, oh joy.
They say everyone reacts different so I hope for you that you can sail through with no problems!

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@rbarber100

Please let me know how you only hear about the bad about anastrozole on this site.

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Profile picture for lynnn @lynnn

@katrina123 I had a lumpectomy in 2016 and went on Tamaxifen. Like you, I got another cancer in the other breast anyway - 4 years later. I have been on Anastrozole for the last year or so and concerned it may not protect me.
I do understand it is not 100% protective, so I just have to hope for the best. I hope you will be ok also. It is urgent to catch these early.

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@lynnn
Thank you Lynnn. I also hope that you will be O.K..

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I did have some hair fall at the start of taking Anastrozole. I use some special shampoo. I was already on Minoxidil pills and I added the minoxidil foam several times a week. My hair did return to the same level as before starting the medicine. At 20 months I had many many side effects and Terrible pain. My doctor changed me to Exemestane and I’m having less side effects. Starting the new medicine I again I’m having some hair fall, but I feel like if I do the same thing that my hair will rebound again. Good luck in your journey, everybody’s is different.

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Profile picture for rbarber100 @rbarber100

I started on anastrozole and was on it for about 2 1/2 years. Many do not have side effects (and don’t always join these groups so you hear mostly the bad here!) but I had pain and fatigue at first, then hair loss started after the first year. Not terrible, mostly thinning, but a topper helps. After the 2 1/2 years I was feeling about 90 even though I am a young 73. When I took a break I realized I had been in a severe depression! I have switched to exemestane in September and starting to see a little of the same effects after only a few months. I guess I am stuck like this for another 8 years, oh joy.
They say everyone reacts different so I hope for you that you can sail through with no problems!

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@rbarber100 Thanks for sharing. I think for me than I made the right decision to stop after 3 weeks. It was making me not feel like I wanted to do much. Stiffness that is still bothering me and I'm a walker and biker and around your age. Getting ready to turn 72 in December. I already have thin hair, not from the medicine, but I did notice I was losing a lot in the shower just starting this, now it has slowed down to almost nothing. For me personally I want to live my life feeling the best I can. Will not try any further meds after reading other comments. You girls are amazing that are willing to stay on it. Good luck to everyone. What a way to spend our later years worrying about breast cancer.

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Profile picture for 1aug2allis @1aug2allis

@rbarber100 Thanks for sharing. I think for me than I made the right decision to stop after 3 weeks. It was making me not feel like I wanted to do much. Stiffness that is still bothering me and I'm a walker and biker and around your age. Getting ready to turn 72 in December. I already have thin hair, not from the medicine, but I did notice I was losing a lot in the shower just starting this, now it has slowed down to almost nothing. For me personally I want to live my life feeling the best I can. Will not try any further meds after reading other comments. You girls are amazing that are willing to stay on it. Good luck to everyone. What a way to spend our later years worrying about breast cancer.

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@1aug2allis
I feel just like you. After 5 months on Anastrozole with stiffness in fingers and shoulder tendons I quit. I’m 71 and want to enjoy each day with as little pain as possible

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I think we both will do fine. There are no guarantees that the medicine will keep us from getting breast cancer again. I have read some of the other posts and even women that took it for 4 years were reporting they got it again. Goodluck! Just keep as healthy as possible and exercise. Enjoy each day and don't worry about the future.

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Profile picture for 1aug2allis @1aug2allis

@katrina123
Like you I had estrogen positive cancer this summer and had a lumpectomy. I refused the radiation since my surgeon said all the margins were clear. Oncologist recommended it. I hope I won't be sorry later, but I didn't feel the need to go through it. To me it just seemed like they do it as a just in case they didn't get all the cancer. I was put on Anastrozole 1mg, but after 3 weeks I have decided to stop because of the side effects. I am a little worried doing that after reading that some of you had recurrence 4 years later. I don't drink, don't smoke and eat pretty healthy. Hoping that will keep me from getting it, but I may be totally wrong. I am willing to take that chance just so I can feel myself again and enjoy each day.

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@1aug2allis Age is also a factor.

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