I've had 3 Prolia shots and now have pain in both legs since April

Posted by jcking1938 @jcking1938, Nov 6 11:14am

Since I've been getting the Prolia shots (3x now), I've had pain in both legs and my right hip. I think it's from the Prolia shots but none of my doctors or family think so. Just wondering how long the pain lasts.
I just had my third round of shots in my back with steroids. Hope this one will help. Anyone else having problems with pain from Prolia?

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Profile picture for bocabird @bocabird

@gravity3 I had them done last year- I don't have the report in front of me- but the worst area was the hip area neck- about -2.3 some- 1.6 and yours? My spine actually got better and I was off everything.

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@bocabird As with a group of radiology tests different readings from different people. Some note a shadow, another says intestinal waste. When in doubt get a 2nd opinion and they usually include a new scan. You're all in our thoughts and prayers. I have a genetic degenerative bone disease with long bone pain. Dense pain & nerve pain to name a couple of types can wear a person down. Side effects of medicine that's supposed to help is unexcusable. Big pharma sets aside a portion of their 8 & 9 figure profits for the in-house lawyers to use to settle when it's found that some rushed to market or failed to report some trials negative data. FDA Black box warnings get issued and profits have grown to 9 & 10 figures enabling settlement funding to unfortunately grow.

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Profile picture for babby @babby

I took three Prolia shots and the last one caused me so much pain throughout my whole body. I woke crying in mornings wondering how I was going to get up. It was agony. I thought I’ll buy a new mattress and see if that helps. Went to mattress store one day and literally I was in so much pain, I asked the sales rep to help me get in my car to drive home. I have severe scoliosis and spondylitis plus fiber myalgia. That Prolia about killed me. My doctor put me on Re-Clast last April and I was sick first two weeks with headaches. I was fine until June and started getting headaches. They think it was my blood pressure so have low dose med and it helped. My foot swelled up by baby toe in July and podiatrist said bone needed shaved which I refused. Your feet have more bones than anywhere in your body. Idk these drugs are very scary. I have pain my legs, but I had before Prolia. I don’t want these drugs anymore. I’m thinking just exercise and healthy diet with Citrate Calcium and D supplements. Good luck.

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@babby I have heard from my Doctor Algae Cal is excellent-have to get more info on that

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I took Prolia almost six years ago and for six months, I was in pain in my whole body, which finally went away after I quit taking it. I started on Fosamax and quit for a while for dental work, then back on. After Prolia, my lower back still hurt so I went to a pain doctor who tried an ablashion, which did not work. He then tried an epidural, which did not work either on my right hip, behind my hip bone and glutes. He also tried a shot directly into that did not work either. Another orthpedic doctor tried a shot into my groin, didn't do anything. Another pain doctor tried an epidural which didn't work. I had pain in the front of my legs last month, I had a shot in both knees and it has gone away. going to another pain doctor next week. I have gone to so many physical therapists I have lost count. Some did movements which hurt. I think if hav glutus tendinitis....but no doctor has said that. YouTube has. I guess I have to live with it. I was on a walker after my hip replacement but now use a cane and happy I can do that and probably that is the way my life is going to be. Hope I can keep walking with the cane even though it hurts when I walk. I can sit ok. I wish all of us could get better.

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Were you on Tymlos for 2 years before trying Prolia?

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I need an extraction but only 3 months into my 2nd shot..im terrified of ONJ as I have severe gum disease so more prone to ONJ with extraction..also prone to Spontaneous Fractures.

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Profile picture for bocabird @bocabird

FYI I get prolozone shots in my back for me they work for almost a year.- tried steroid epidural once did nothing. Medicare does not cover.

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@bocabird

I have a friend who has had 2 surgeries on L2, 3, 4, that area. Zero help. Spinal cord stimulator, etc. Do you thnk the prolozone shots may help him? Thank you.

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