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Bladder Cancer Group: Introduce yourself and connect with others
Bladder Cancer | Last Active: 3 days ago | Replies (404)Comment receiving replies
Welcome @annabel55 so sorry you're having to go through all of this and the surgeries.
I, too, was diagnosed with high grade NMI bladder cancer 4 years ago. Hopefully yours is not invading the muscle. Also, I didn't realize bladder cancer could be inherited. Besides the smoking for a year were you ever exposed to any chemicals of any sort? Just curious. I smoked for 33 years so there's no question as to where mine came from. By the Grace of God I managed to quit smoking 7.5 years ago. Three and 1/2 years into my quit was when I got my diagnosis, but I pushed through and never picked them back up again. Best of luck to you on everything.
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@talltxlady If I may ask what are you currently doing for treatment at 4 years out. I am 1 year post diagnosis. I’ve had 12 rounds of BCG and 3 TURBTs. My last 2 scopes were clear but I can’t handle the BCG. My doc said to hold the last round of BCG and I get an in office scope in January. I’m nervous about not being on anything for now.
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@talltxlady thank you for your message.
Well done for quitting smoking I know it’s hard and staying off them. Worth it… for us! I bet it was annoying to get the diagnosis after you quit.
I think it is a smaller percentage inherit it. Nope I did not work with or in a place with chemicals. Apparently it has only been growing for a year. So something triggered it a year ago! I have no idea what! 🤷♀️
Did you have your bladder removed? I’m getting use to the idea that might have to happen.
Wishing you all the best.