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DiscussionHow does IVIG help neuropathy?
Neuropathy | Last Active: Nov 13 3:47pm | Replies (14)Comment receiving replies
Replies to "@persistentc I am waiting on the results of the anti-Mag test. Should be today. The EMG..."
@allessio77 mine is complicated. Had EMG in 9/23. My neuropathy was getting worse quickly since that June. Started In around 4/2011 in right Foot. (Had Leukemia AML in 1981, Chemo, Total body Radiation and Bone Marrow Transplant. No Neuropathy ever. 2007 DX w BC, late effect from 1981 treatments. Chemo and double mastectomy w silicone implants that were removed in 4/2015, ruptured and leaking. Last Chemo TX was 2/4/2008. Never once during treatment experience neuropathy! Then around April of 2011, stated in my right toe. March 2023 told high Cholesterol went on a Statin. By June down at family reunion in Stone Harbor, Cape May NJ needed help walking, my fingers got way worse. Needless etc. so Sept my Neurologist had his Partner do EMG. Went back for results. Partner wanted to do Spinal Tap. My Dr response to me, ‘I am not ready to go that route yet’. So earlier this year my Neuro tells me wants to do EMG. I said why we did that. He said, this can tell if you might have CIPD. My protein in spinal fluid was 88.8!!! Also he ordered blood work. I see you mentioned KAPPA? Mine said Free Kappa Lt Chains, S range, 3.3-19.4 mine flagged high at 37.8 and 2 others, Lambda Lt Chains,S and Kappa Lambda Ratio,S I have no clue what that all means. Only the Protein in my Spinal Tap, not good. An indicator for CIDP. I was to see a doctor at another Major Hospital they specialize in DX & treating CIDP this past Monday but was to ill feeling to go so cancelled. I also read somewhere on here that if you had Chemo you can’t take IVIG. Isn’t that one of the tx’s for CIDP? Sorry so long. TY
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@allessio77 I would love to keep in touch because it seems we are going down the exact same path.