Living in chronic pain

Posted by mrmacabre @mrmacabre, Aug 18 3:13pm

I've been visiting this forum every day for several weeks now, and there seems to be a new trend throughout a lot of the comments. What I've noticed are the comments about our doctors and specialists not seeming to offer us any/enough sympathy or support in dealing with the chronic, never ending pain that a lot of us are experiencing. Sure, we can tell them what we go through on a daily basis EVERY day of every week, but then they see their next patient and move on.

It just seems that no matter what we tell our doctors, spouses, adult children, friends, or even grandkids about what we have to deal with, and how it affects our daily lives, they can never really truly understand what chronic pain does to someone over a period of several years. It just wears you down physically, emotionally, and mentally, to the point that you're just existing, either for them, or for some other reason.

Some nights, when I'm climbing into my sleeping chair with my wife of 43 years sleeping in her bed on the other side of the room, I don't want to go to sleep because it means starting another day all over again when I wake up. Every day is the same, I wake up alone because my wife is at the office supporting us. She's home when I wake up on Saturday morning, but then she's gone again on Sunday morning at her church for half the day. So I'm at home alone the vast majority of the time. I know she'd do anything to help me whenever it was needed, and she sympathizes with my problems, both mentally and physically, but on some days you just want to stop existing, and for the pain to stop, but getting someone else to understand that seems to be impossible. It's something that can't be conceived of without them actually experiencing it for themselves.
Every day for the past 10+ years I've dealt with the chronic pain of osteoarthritis in my lower back, hips, and knees, as well as idiopathic poly neuropathy in my feet, and I just want it to stop. Another fucking day of just existing and staying at home all day by myself? Why am I even doing this? We never go any where, there's no money for any kind of a vacation. Nothing ever changes, except for the levels of my pain. Every day is exactly the same, and the weeks, months, and years just fly past me. The sheer monotony of my current situation is maddening, and I'm positive that I'm not the only person on this forum who feels exactly the same way.
How can we get someone other than ourselves to comprehend the ways we're feeling having to deal with this? Is it even possible?

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Thank you for your comforting words. Sometimes I just feel low enough that I just want to express how I feel. Just let it out. Brain aneurism. Wow and I'm complaining. I will pray for your comfort also.

REPLY
Profile picture for robert310 @robert310

Thank you for your comforting words. Sometimes I just feel low enough that I just want to express how I feel. Just let it out. Brain aneurism. Wow and I'm complaining. I will pray for your comfort also.

Jump to this post

@robert310, thank you for your prayers. Today I woke up with body pain, even my hair (scalp) hurts. So I decided, I am going to eat evrything my Dietitian told me not to eat. Ha! I hope you have a better day, and week... take care, kind Sir.

REPLY

You need to find something you can and like to do. Journal, movies, books, puzzles, games on computer, meditation are a few suggestions. I also had to see a doctor for depression and anxiety and the meds really help. You need to LIVE and only you can do that. I do hope this helps? It did me 20 years ago. I have a disease called CRPS. Not fun but learned to like myself despite the doctor giving me a steroid injection incorrectly that caused this. Try to find an on-line support group. Check out, "Stuff That Works " on line for your symptoms and support. Gentle hugs

REPLY

Hi. My situation is identical to yours. Without getting into all of the specifics, let me just say that I completely understand and relate to everything you’ve posted. Years of excruciating spine and hip chronic pain (legs and feet have terrible neuropathy,) my body is withering away, I exist daily on multiple doses of strong opioid medication. If I didn’t have it, I wouldn’t be here writing to you. My days are filled with sitting in the only chair that doesn’t hurt (with my two little dogs,) looking out the window, and watching YouTube videos… my husband is at work all day so I’m alone every day, as well. Why? Why me? Why now? This all started when I was 49. I don’t leave the house because I can’t walk very much any more so there’s no point. All I can say is thank god for my completely supportive husband. He helps me every day. I’ve struggled to accept my chronic pain and most days I’m just so angry and depressed. Trying to explain this to my two sisters and my doctors is incredibly difficult. No one seems to understand the extent of this. I wish my pain doctors could live a week in my condition; maybe then they would really understand??
I’ve rattled on for too long. I just wanted to let you know and understand that you aren’t alone.

REPLY

I feel the same way. Monotony!

REPLY
Profile picture for prayersforall @prayersforall

Dear Fellow Chronic Pain Sufferer,
Early this morning, when I read your post, it resonated with me long after I closed
my computer. Sadly, the other folks who commented, reflected and also feel your pain.
Your pain became 'our' pain' as chronic pain sufferers.

I read your post with caring and tears. I had written to Mayo Connect a few days ago,
with a similar plea for help. (Hardening across the back with severe pain ...) perhaps
may seem a bit light hearted, but the feeling is within my words.

Sending extra prayers for each new day and be grateful to be part of it. Until that
'some day 'Day' comes in answer to our plea ... please know that prayers are with you.
Good Luck to all in 'our' Chronic Pain Sufferers Club including you, dear mrmacabre.

Jump to this post

P.S. If I sent in a plea for help today ... I'd add many more pain filled
moments.
Love, always Mom

REPLY
Please sign in or register to post a reply.