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nancykay1888 avatar

Antisynthetase Syndrome: Anyone else?

Autoimmune Diseases | Last Active: 4 days ago | Replies (106)

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Profile picture for devineblessing @devineblessing

I was diagnosed with Antisynthetase in December 2024. It has impacted my muscles and lungs. I am on an immune suppressant medication and working on getting stronger by walking and doing light strength exercise. Some days I feel overwhelmed and frustrated not knowing what to expect. My life is not the same….taking the immune suppressant medication I am concerned about being around people and catching something that my immune system will not be able to fight off. Also, the medication Mycophenolate can cause melanoma which I had on my arm in 2017. I feel so restricted on many levels which is so frustrating…..

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@devineblessing
I totally understand how you feel…totally! I think the worst pain is not knowing how to plan your day. I am a wife, mother and grandmother... so many plans I had. Now I got that off my chest I wanted you to know you are not alone. I for one will try to remember you as I go out my day. It does feel better knowing you are NOT alone. Any support you may think I can help with please don’t hesitate to reach out