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I've also been diagnosed with CLL since February 2025. They first picked up that I had a problem was back in 2015 but it wasn't severe back then so they kept an eye on my bloods every 6mths up until February this year when I found out that it was stage 4 and I needed medication I'm 67yrs old now.. I went on to have a CT Scan more blood tests then I had to have 2 blood transfusions and 2 bone marrow biopsies in June this year and blood tests every 2wks. The first blood test was ok but after the 2nd I had to have a further blood transfusion in July, and the same in August then in September I had to have a further 2 blood transfusions. I still have blood tests every 2wks but since September I've not needed any further blood transfusions thank goodness. Im still getting my bloods tested every 2wks for now until they're satisfied that the medication is working. The only downside is that I was told that it can't be cured but is treatable which is why I'm taking Brukinsa, Allopurinol everyday and Co-Trimoxazole 2tablets daily on Mondays and Thursdays, as of yet the only side effects I've had are unexplained bruising and my hair thinning (not to the extreme where it's noticeable) and dry mouth. I don't know if there are any other side effects I can expect as ive only been on the medication since June. I don't have to pay for my medication as prescriptions are free where I live in Mid Glamorgan, South Wales United Kingdom so I'm lucky. If anyone knows of any other side effects that could arise with this medication could you please let me know. Thanking everyone in advance 😓😞🤔

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Replies to "I've also been diagnosed with CLL since February 2025. They first picked up that I had..."

@tezy15plus5 My husband started Brukinsa this month after 3 years W&W, he takes Allopurinol once a day and Brukinsa twice a day. Tomorrow is his first CBC test, hope his WBC is getting down after been 201 at the beginning of the 2026. He ended up in the hospital for a week with WBC 237 at the time of admitting. On top of it his CLL» found its way” in to his brain:(
So far no side effects but it’s been only 9 days since he started medicine, we have a big hope for this targeted treatment.