I had a small NET tumor, two cancerous lymph nodes and some cancerous tissue in the mesentary removed from my ileum in 2022. It wasn’t until 2023, when I moved to Jacksonville, FL and had access to a Mayo Clinic scan, that they determined I still had NET cancer on the opposite side where the surgeon had not checked. I have two cancerous lymph nodes that have spread to that part of the messentary and to my liver.

I wanted to get surgery to remove them, but my Mayo Clinic specialist advised against it since I am already at Stage Four. My layperson’s thought was that I wanted to remove as much cancerous tissue as possible.

So far, my cancer is very stable, including in the mesentary.

I think every one of our situations is unique and requires the expertise of NET specialist physician like those at Mayo Clinic. They can see exactly where the NET cancer is and make the best recommendations.

But I followed my doctor’s advice, and so far so good. I truly believe a cure is coming, and that it will eradicate the NET cancer in our bodies.

Take good care! 😊