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Is anyone familiar with the BK Virus?
I'm new to this bladder cancer forum. I'm stage 4 pancreatic cancer starting year 4 continuing with gem-abraxane chemo. I've just been told I have high grade bladder cancer and have had hematuria for 2 months now (UTIs have resolved). The only positive lab test so far has been the BK virus test. Does this mean I have cancer for sure?
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Any NCI affiliated institution should be fine.
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1 Reaction@mnewland99
My husband initially had a partial cystectomy where the diverticulum and tumor were removed along with 29 lymph nodes in the area. One was positive right beside the bladder. He followed with chemo and BCG but his very aggressive cancer kept returning so he chose a radical cystectomy/prostatectomy with neobladder. He had every complication you could get and multiple procedures for over a year after that but is now healed and cancer free. New normal has him self catheterizing 3-4 times a day but he did not want to deal with a stoma. He may have leaks at night but never during the day. Thank you for your well wishes. Prayers have gone a long way to get us through this.
@ Sue: did your husband have neoadjuvant or adjuvant DDMVAC/CG and/or adjuvant ICI (Pembro, Nivo, Atezo)?
@mnewland99, did you schedule a second opinion? Any confirmation of the diagnosis or did bladder cancer get ruled out?