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@brie87144, Keep looking Brie. You're being proactive with your doctors. I hate the clinic now where i go. Ive been going there for 22 years. Now my cardiac doctors are in the same clinic. They must hate my guts when i try to be proactive, or maybe im doing it wrong. I do lots of research online and ive started trying to diagnose myself. hahaha So i ask the dr why dont we take a hep-c test? And she says well we did one in 2003 and if you havent had a transfusion or used needles i probably dont have hepc. So i say, no but ive had a million blood draws since then. I also said no disparagement to your clinic. But hepc was poo pooed by my dr, also dont thinkd i have lupus, which i had a test for in 2009. What? I cant have it at a later date? And ive also found out that you dont have to have the butterfly rash on your face. You can have the rash anywhere. They must think im a hypochondriac, or i want to be sick. No, no, no. I want to be better because my grown kids still need me so i have to find out whats going on with me so it can be treated. I have chosen new drs because of their attitude towards me or mistakes they have made in my care. A dr i had in 2003 prescribed quinine for my restless legs. I developed thrombocytopenia purpura. I had nausea, vomiting, and my body was beginning to bleed. Im not mad at my dr for this, im mad bc it took them 3 months to find it. My platelets were down to 5000 and nobody found it. I remember the phone ringing as i got back from a dr visit, Judy you have to go to the hospital now. The dr on call at the hospital saved my life, and whoever saw my platelet level. Im po that i have to be my own medical detective. The drs should be the ones to do this. Im so sorry for this long post which really turned into venting. Keep at it Brie. Remember, you are the best friend you will ever have. Love, Judy
Replies to "@brie87144, Keep looking Brie. You're being proactive with your doctors. I hate the clinic now where..."
@ryman, im glad i can get my test results from their website. Its called My Chart. Do you not have something like that? Ive come to the point in my life where i dont trust anyone, doctors, men in general, and especially the government. Haha.
Judy
<br><br><br><br><br>Restless Leg, just maddening isn't it. Doctors do not give <br>Quinine here, I did do searching and found that Diazapam can work and it does <br>for me. A doctor approved and prescribed it, GP refused....I only <br>take it when I need it. The doctor that prescribed it for me has known me for <br>approximately 29 years. <br>I have never figured out what triggers an episode, I often go <br>weeks without an episode.<br> <br><br>
Yes, I can get my results from the patient portal, but if I need blood work done elsewhere I ask for it. No, I do not trust either. Pres Reagan said "Trust but verify." I try to verify but I sure don't trust.
@ryman, lol. I like that "trust but verify". Absolutely. Judy
This was a "reply" to someone here about Restless Leg....now where was their post?
I had the worst time with restless legs and couldn't seem to relax. They were the worst when I was overtired. I began taking 400mg of magnesium 2 hours before bedtime and I can say two things within three weeks I had no restless legs and fell asleep easily and slept so well I felt like a new person in the morning ! It worked for me. I really hate medications so thought I'd try something that naturally would relax my twitchy muscles.
<br><br><br><br><br>Magnesium is amazing, I so agree, however it <br>will cause diarrhea for some and me included. It will relax muscles, I do <br>take it occasionally, but must not take the dosage as high as you are able to <br>consume. Infact, I did take some last night and today your email was waiting for <br>me. Most of us need Magnesium via tablet.<br>Thank you for your concern.<br> <br> <br><br>
@danybegood1 wow you have had a rough road. Your doctors sound just as bad as he ones here in Albuquerque. I was divorced by 2 doctors who didn't have time for a patient like me here at home. The first 6 months with mayo they kept telling me maybe iall my issues are psychological. I'm probably the most annoying dreaded patient out there lol. I won't take no for an answer and won't let them push me off to Psych when I had a perfectly normal psych exam. I've definitely learned to speak up and not let them push me off. Especially cause I am traveling there every month and it's been expensive, that's not even including my copay and deductibles noticed that when I annoy my consultative medicine doctor, he gives me whatever test or referral I'm badgering him for lol. He also doesn't like that I am well versed on so many things medically because he can't just ramble off something I don't understand and be okay with it. If I don't understand I make him explain it. Whatever works. I hope you find answers
@87144, Brie? You go girl! Yeah, i had a dr tell me my symptoms were all in my head when i started itching. What a jerk he was, unfortunately we have them in all walks of life. Ive had a few docs that were pretty weird. It couldnt possibly be me. Ok this little computer is supposed to catch punctuation for me. Oh well, i cant be bothered. You keep at the docs and i will too. Im down to emailing them and suggesting which blood tests i need. Hepatitis, lupus anyone?
Sincerely, Judy
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I recently just changed doctors because of some bad mistakes. My new doctor probably thinks I am a nuisance because I keep asking questions and pointing things out. But I have a lot of issues and some are still not resolved to the point of treatment. It is test and wait, wait for an apt, more tests,etc. Now I request a copy of my blood work.