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toste avatar

Are there support groups for Myelofibrosis?

Blood Cancers & Disorders | Last Active: Jan 31 3:55pm | Replies (24)

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Profile picture for jtcat7 @jtcat7

Hi, @toste. I was diagnosed with prefibrotic myelofibrosis in June. JAK2, ASXL1, ZRSR2 & TET2 mutations. Started with a platelet count of 1.4 million. Now down to 490k after 2,000mg/day of Hydroxyurea then 1,000 weekdays & 500 weekends. Still trying to find a balance with the Hydroxy between platelet count & white blood cell count. Good luck!!
Cheers

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Replies to "Hi, @toste. I was diagnosed with prefibrotic myelofibrosis in June. JAK2, ASXL1, ZRSR2 & TET2 mutations...."

Hi @jtcat7 , may I inquire about the side effects you encountered so far from Hydro