Replies to Hi Lori It’s been a long time. A follow up on my PTCL journey since Mayo….

← Return to Peripheral T Cell Lymphoma NOS

Discussion

Blood Cancers & Disorders | Last Active: Nov 16 9:23pm | Replies (8)

Comment receiving replies

@capthondo

Hi Lori
It’s been a long time. A follow up on my PTCL journey since Mayo. Unfortunately my PTCL relapsed after 100 days in Nov 2022. I searched for various clinical trials but could not qualify for any since I didn’t have enough active disease. I was in semi remission for 2 years with pet scans every 3 months. In Nov 2024 I began a Romidepsin/Duvelisib therapy and was in remission after 3 monthly cycles. In March of 2025 I underwent a Allogenic transplant at Massachusetts General Hospital in Boston. At the end of 100 days I was declared cancer free. I feel great and have no side effects.

Jump to this post

Replies to "Hi Lori It’s been a long time. A follow up on my PTCL journey since Mayo...."

Lori, Volunteer Mentor | @loribmt | Nov 8 12:48pm

Hi @capthondo It’s great to hear from you! Can’t believe it’s been a couple of years…just doesn’t seem that long ago! I’m sorry to learn about the relapse. That’s a word no one wants hear. But I’m so happy you’ve been given a 2nd chance at life with an allo bone marrow transplant! Congratulations. You’ve gotten past the first critical 100 days and now well into your recovery! It sounds like everything is going along smoothly and you’re resuming life on your terms. ☺️
Are you off most of your meds now?

VIEW AND REPLY