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I am looking for others diagnosed with microscopic colitis
Digestive Health | Last Active: 1 day ago | Replies (270)Comment receiving replies
@ndough I have had CC for two or three years. I am 64 and my GI did put me on Budesonide because the diarrhea went for months. I was 196 when it started. I am now 143. I couldn’t leave the house because of the watery diarrhea. He tried a different medication last time and it made the diarrhea worse. I have autoimmune diseases. MS, Diabetes, Collagenous Colitis, Psoriasis…. He hasn’t talked about other options for treatment. When the Budesonide treatment ends, either the watery diarrhea starts right away, or within 4 months. They told me they will have to find out the lowest amount of Budesonide that keeps me “safe”.
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@1961deb That’s a huge weight loss! That is also why I keep at least 3 different sizes of clothes on hand so I usually have something to wear. I was warned away from taking the Budesonide because of the other autoimmune issues I have. Also, those warnings are on the pharmacy sheets that come with the drug. My pharmacist actually called me at home when my GI called the RX in because the warnings said: If you are female, do not take if you are over 60 (I was). Do not take if you have osteoporosis or osteoporosis (I do). Do not take if you have Thyroiditis, especially Hashimotos. Do not take if you have any other autoimmune disorders. Budesonide is a corticosteroid steroid and will eat away at your bones. That is the least destructive it can be. The half life of this steroid is longer than your full life. I had to have the entire right basal carpal joint (thumb) on my right hand rebuilt from just taking 2 doses of steroids. It had started eating away at the joints in my hand where I had begun to develop OA. I couldn’t resume my piano and now I cannot do anything with that hand. I really really hate giving advice, but I suggest getting another GI. Preferably a woman. I think it’s horrible what you are going through. Mine came out of remission 11/1 and is going full blast right now. How on earth do doctors expect us to make an office visit when we can’t get more that 2 feet away from the bathroom is beyond me.