BCG treatment 6 week done, cistoscopi found new tumor.

We cannot predict. You also provided far too little information. Papillary only? CIS only? Both? Regular or rare subtype? Monofocal or multifocal? Size of tumor(s)? Grade (low, medium, high)?

PT1A usually has more than 90% 10 year survival if treated timely.

Plus, treatments are being added at breakneck speed which is excellent news.

Read the forum. Visit BCAN.org.

After two surgeries, and BCG treatment, tumor returned. So, same as for you, the BCG did not work for me. I had third surgery and after healing, had Adstiladrin treatment. Three months later, Cystoscopy showed only inflammation. I go for second Adstiladrin treatment tomorrow. Urine has been blood-free and all looks promising. Good luck to you.

Hello @stanghbogdan1. It is not unusual for recurrence, or for BCG failure. My husband experienced this same situation after surgery and chemotherapy. Bladder tumors like to keep coming back as the cancer cells are floating around in there just waiting to attach to the bladder wall. It has to be terribly scary at your age with a young family. Cancer really does take hold and change your life but you can still be a survivor. My husband had multiple TURBTS (the surgeries via cystoscope as they are called) to remove suspicious or cancerous area of his bladder. His urologist suggested Keytruda but he had recurrences on that. Adstiladren was not approved quite yet so he did not get to try that. He chose to have his bladder removed- a radical cystectomy, and a neobladder to replace it. This was about 2 1/2 years after his initial diagnosis. He just didn't like having cystoscopies over and over and removing tumors as they showed up. His tumor was highly aggressive from the start. He is free of cancer now and having recheck cystoscopies and CT scans yearly. Other people I have known have lived long lives with a less aggressive tumor having recurrences removed as they happen. Every year new therapies emerge from testing or are in clinical trials so you just keep kicking the can down the road doing what you have to until one of the treatments does the trick. Adstiladren seems to be helping many people. We are only patients sharing our experiences and knowledge acquired through this cancer trip. Your medical team is the one for answers as they have all your information. It is always wise to consider a second opinion especially at a large cancer center or teaching hospital where newer modes of treatment are happening. Do you have such a facility nearby? We travel 10 hours by car to Mayo Clinic Rochester MN from Ohio for our cancer care. It has been worth it.

The ultimate outcome of any of our NMIBC cases are difficult to predict. Based on everything I've read to date, AND per comments by allen1947, I'd give Adstiladren a shot after an initial BCG failure. Next in line I might try GEM/DOC chemptherapy but the Adstiladren results look promising. Ultimately it will be up to you, your family, your particular cancer characteristics, and your discussion with your medical team. Best wishes for a successful journey!

I’m ready to start my one year monthly treatment. I know of several men that have had two or three recurrences and are doing great. An important thing is keeping a positive attitude. If you have to worry, then worry about crossing the street and being hit by a dump truck.

@gskelly That is so important! Positive attitude, not being hit by a dump truck. Great suggestion though. I hope BCG maintenance is successful for you.

Everybody is different so I cannot say anything about longevity. Just stay close with your doctor and ask a lot of questions and get a plan of action. Hope everything turns our well for you.

I had a similar experience. I had the cysco and TURBT surgeries. My first 2 month check up, my doctor scoped me and found a few suspicious areas. He wanted to be sure so I had another TURBT surgery. Afterwards, he told me he scraped and cauterized a much large area. The next biopsy he preformed showed no cancer so after a couple months I started the BCG treatments.