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Typical Carcinoid Tumor in Lungs

Neuroendocrine Tumors (NETs) | Last Active: Nov 22, 2025 | Replies (64)

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@jhhaas
I am not sure if I am posting in the correct place. When was your lobectomy? Four weeks ago, I had my RML removed vor a 3 cm typical carcinoid tumor. I had other issues in my lung from a maze procedure that had to be corrected. I had scar tissue and a lung hernia repaired with mesh. The surgery was 6.5 hours and done robotically. I am still in a lot of pain at the incision sites and have nerve pain even near my upper abdomen near my naval. I opted for no narcotics and just 4 gr Tylenol a day. I opted for a Alpha Lipoic Acid instead of gabapentin.

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Replies to "@jhhaas I am not sure if I am posting in the correct place. When was your..."

@pekoe01 I had my robotic assisted lobectomy two years ago at Memorial Sloane Kettering. Not sure how long my surgery was, but it started in the morning and by the time I was awake, it was evening. They kept me in the hospital for two nights, with the drain tube being removed on day two. I will say I was extremely uncomfortable for the first several weeks, nothing really touched the pain so I stayed away from the narcotics. I alternated Tylenol and Advil, but would take it half an hour before show the effects of the previous dose would not completely wear off. I also had to get up and walk around the house to help the pain, it sounds counterintuitive, but it did help. It also helped when I realized each week, it was a little better than the week before. But I was able to get out and about a little bit and then come home and rest. But I did not feel safe driving for about two months. It does take time but little by little it gets better. I could not wear a bra for three months, and it felt like there was swelling, pushing on my ribs from the inside, which they probably was. I would say for me that four weeks was a turning point, I felt well enough to take care of myself although I was still not driving. I live alone so that gives you some idea of how I was functioning. Two years later, I still have some numbness Under my ribs on the right side, but I can live with that. It sounds like you had some other issues that I did not have so it may take a little longer for you. I did have that nerve pain for a while, but that has gone away, thankfully. Hang in there, hopefully things will get better as time goes on.