← Return to Brinsupri follow-up

Discussion
scoop avatar

Brinsupri follow-up

MAC & Bronchiectasis | Last Active: 22 hours ago | Replies (334)

Comment receiving replies
Profile picture for cool @cool

Hello out there.
I do not cough. Had only one coughing bout in September in which I coughed up four small globs of gray mucus. Yeah! I had been on amoxicillin for four days for a lung infection diagnosed from a low grade fever, fatigue, oxy levels at 90 and breathing limits. I have been well now for a month while limiting exposure to crowds due to low immunity. My CT scan last month showed the nodules from a year ago were the same size. But much mucus plugging noted in lungs. I have gerd; sleep on my right side for that and have mucus in throat a lot. Spit up when I can. Why don't i cough. How do I clear my lungs?
I have been diagnosed with brochiectasis this last year. Last month my pulmonologist has given me the option of trying Brinsupri and I am waiting to have it all processed and sent as there are several steps for insurance approval, etc., etc. Meanwhile, as I am medicine adverse, I am questioning whether to take it or not even though I have said yes and the process has begun.
Rare risks are skin cancer, gingavitus, etc. I had a squamos cell carcinoma removed from my lip this last September.
It seems some of you who have started brinsupri are coughing and have more pronounced symptoms. Mine are just on the CT scan and shortness of breath.
Any opinions will be welcomed.
Thank you.
Mary

Jump to this post


Replies to "Hello out there. I do not cough. Had only one coughing bout in September in which..."

@cool I can relate to you, when I was diagnosed with BE in 2021 , was never told about airway clearance, until I found out this group forum, which I learned a lot. I had mucus plugs in my CT , through this group I started nebulizing 7% saline ( my pulmonologist did believe in it initially) so I started it on my own, my last check up he said my lungs sounded better, less shortness of breath, doing airway clearance, started the free app Autogenic draining, watching videos. Don’t know when my next CT hopefully those mucus plugs are gone my next appointment in December. Also he started me on
Mucinex 1200 mg. Some days I get a lot of mucus out, but not everyday. Just keep on trying and I thank everyone here for their input. May God bless us all.