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I am looking for others diagnosed with microscopic colitis
Digestive Health | Last Active: 1 day ago | Replies (270)Comment receiving replies
Hi again. I posted awhile ago. I've been on Budesonide for a few months now for MC. They started the regular 9mg, 6mg, 3mg routine. I then did 3mg daily for awhile and then about 2 months ago I started every other day. As far as effects, I haven't had diarrhea since I was diagnosed (last February?). If anything I'm a hair on the constipated side, but not really. I eat what I want and deal with minor stomach pain. It's a part of my life. I am stubborn and refuse to change my diet. Plus, I am way underweight (97 pounds and used to be 105-110!) and need all the calories I can get. I'm mostly self-regulated because my GI has too many patients and is very hard to reach. There is no "Personal" touch there. I think they're all like that where I live. My initial appointment was fast-tracked by my GP due to weight loss, otherwise it would have been months out! They NEVER check up on me. I had to call to be put on every other day. Very disappointing. I'm considering tapering off to one every two days and see how that goes. I have Osteoporosis and was never told Budesonide is bad for that. I'm wondering how bad that is. I recently had a bone scan that showed the same as I've been for years so...anyway, so sorry for everyone dealing with this. No fun. Out of the blue at 64 after endometrial cancer (caught early and totally gone). I wonder if it's related - like stress of dealing with hysterectomy etc. It came 4 months after. Hmmm.
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@janstur I am in total agreement with your feelings about the treatment from GI’s, and I have been treated that way by a number of them for more that 35 years. That’s how long I’ve had my cc. If you have osteoporosis, please don’t take Budesonide. When my GI tried to put me on it a number of years ago, I’m 72 now, my pharmacist actually called my to discuss the warnings. Apparently women past the age of 55 (earliest) to 60 and over should not take it, If you have osteoporosis (I do) don’t take. If you have osteoarthritis (I do), don’t take. If you have Hashimotos Thyroidistis (I do), don’t take. These are all autoimmune disorders. Plus I have other autoimmune disorders that would be affected by it, too. It’s a steroid.
The stress you suffered at 64 may have caused it. It’s hard to say because they (docs) really don’t have a clue. They say mine is autoimmune, but stress does cause flare ups when it’s in remission. And, yes. The weight loss. I have 3 different wardrobes I need to keep for when I go through these size changes. I will drop anywhere from 20-40 pounds in the couple of weeks it flares up, and I am on average a very tiny person to begin with. I sympathize with you.