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IPF How To Cope with Sick Feelings

Lung Health | Last Active: Oct 19, 2022 | Replies (62)

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@kturchin

Yes I’m achy and have pain in all my joints everyday since being diagnosed in May 2015 . I get no help from the doctors and I have read on many articles that muscle and joint pain is caused by IPF which to me and I’m not a doctor if your oxygen goes low like mine does up and down all day because of no activity to move around - your body supports your organs with oxygen first then your limbs I have said this non stop for two years I get no help and am in pain every day I’ve read many articles about lung function etc and they say exactly what I’ve been telling the doctors so yes you doing get muscle and joint pain they just don’t know anything I’ve come to believe about IPF period so I guess we just suffer the pain fatigue and pain to breathe until we die ? I’m disgusted needless to say I’ve just about decided to not even go to the doctor it’s so frustrating and they have not helped me at all the prednisone, cellcept, Imuran made me sick and did nothing but cause cataracts, bone loss, pre diabetes or I pray for all of us for a doctor to listen . Good luck

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Replies to "Yes I’m achy and have pain in all my joints everyday since being diagnosed in May..."

Oh man, Kturchin I hear your frustration loud and clear. You're certainly not alone in experiencing joint pain associated with IPF. I thought you might appreciate this article from Pulmonary Fibrosis News:
- Adjusting to Pain: The Reality of Living with IPF https://pulmonaryfibrosisnews.com/2017/10/12/ipf-reality-of-living-by-adjusting-to-pain/

Have any gentle exercises or rehab techniques helped to ease pain for you? What tips might you share?